Eplerenone & other csr questions!

[Dipper2]

Hello

I’m a csr newbie. Diagnosed in right eye 7 weeks ago, was lucky to see an optician who picked up on it right away & sent me to consultant. At that point the blister was to the side and not affecting vision too much though have weird round after-image type thing that appeared shortly after diagnosis (anyone else have this?! Is it a Scotoma?) and some distortion. I was under ‘wait & see’ treatment. Then unfortunately last week fluid appeared directly under macula so now vision worse - distorted, dull colours, wavy lines the lot. Consultant prescribed Eplerenone as he feels since seems to be developing rather than resolving better to get on and treat it. I hate taking meds so have been researching like crazy - I know VICI trial not yet finished or published but can see small scale trials elsewhere with some promising results. So today I decided to bite the bullet and take the first tablet - hate meds but idea of losing vision is also scary! Wondering if anyone else has tried Eplerenone and how they got on/are getting on. Also has anyone else had a weird flickering - almost like a pulsating dot - in vision (within area of Scotoma thing)?

Thanks to anyone who responds & love to all going through this

[ironbrain]

Isn't the main thing with eplerenone that you have to watch your potassium level? (I thought I might have had CSR before being diagnosed with CNV – much too healthy and taking too much lutein for much chance of AMD, I thought.)

A scotoma is an area of poor or no vision. I get a bright, almost light-emitting, silver mirror-like shape in my vision sometimes, but it doesn't really flicker, just vanished off in one direction or another. I asked the consultant about it, and he just said with mu eyes in the condition they were, I could get all sorts of visual effects.

[Dipper2 in reply to ironbrain]

Thanks for reply - it’s all very odd and disconcerting

[JimGlanDwr]

Just shows how essential it is to have regular eye tests. Our daughter was diagnosed with a melanoma of the eye as a result of an optician visit. This is a rare and aggressive cancer. We hope it was caught in time and after treatment (proton beam) she seems OK. She has to have a whole body scan every six months the last one a few weeks ago was OK

[Dipper2 in reply to JimGlanDwr]

Sending her lots of healing thoughts

[pinkperfection]

I am interested to read your message, as I have been having injections for wet macular degeneration for over a year now. At my last appointment the doctor I saw said I do not seem to be responding as well as I should be and the diagnosis of MD maybe wrong and it could be csr. They said after another two injections they would do further tests if there is still no improvement. I notice you mention weird flickering which I have been getting for quite a while but I was told it was probably psd but now I am wondering. Please let me know how you get on. All the best.

[Dipper2]

I’ll keep you posted - though of course maybe my csr is wrong diagnosis and I have wet macular degeneration - seems as if they are easily confused?!