feeling frightened- cnvm/csr?

[Rhodesholiday]

hello, I’ve been floating on this website since May last year as I noticed a blurred spot in my right eye, which initially the ophthalmologist department thought was cnvm. It’s just off centre vision. I got a call to come in for an injection as I had a pigment epithelial detachment probably due to liquid - which naturally was scary - I am 36, -6 in both eyes, with astigmatism. Never had issues and always knew to look out for retinal detachment but this macular situation is new to me.

Anyway I was hesitant because I hadn’t seen or spoken to a consultant so I saw him, he took further scans, changed his mind on what was going on did a fluoroscien angiography and decided it could be CSR and put me on monitoring as the pigment epithelial detachment self resolved (vision remains impaired in that spot). I now have a small patch of metamorphosia in my right eye too,

I monitor with the Amlser regularly.

when I blink now there are flashes where my patch is and I’ve noticed a small flashing patch in my left eye on blinking which I’ve been to them before about and they say nothing going on there, it’s happening again so I’ve just had more scans this week as I don’t understand now I am feeling scared and back to square 1 again.

I guess my questions are … does anyone else suffer with this specific flashing on blinking where their damage is?

How do you keep your anxiety at bay? I have a 17 month old son so this is even more scary for me as it happened when he was 5 months old- I had no vision issues in pregnancy. I want to see him grow up and this terrifies me that I’ll not be able to support him.

Does anyone have pigment epithelial detachments as part of their diagnosis? CSR? CNVM or uncertainties with their diagnosis’s?

Also, looking for some positive stories as I feel really young to be dealing with this -I know from reading the forums but being to scared to accept my situation and comment that there are people with similar situations and that some of you are around my age or maybe younger.

I have seen moorfields -Prof Tufail. And am currently under Bury St Edmunds in Suffolk.

I have been having therapy with Macular society as well as it’s a really scary and lonely place to be as you see your symptoms constantly so you are reminded of the worries all the time!

thank you for taking the time to read this, Amy x