I'm 34 was diagnosed about 3-4 years ago. I'm -19 booth eyes I had my first Cnv (bleed) in 2016 and it held off for a while. The second bleed was in my left eye and left scaring. But this year things have really ramped up i've been having to have shots every month bouncing back and forth from left to right. I just had an injection 6 days ago in my right eye and need one in my left that will be done in a few days. But since that last injection i had one day where i did not notice the blood in my eye. I can see it as a sun spot thats noticeable when blinking. I now have had another bleed in that same eye. I have asked my Dr when should we consider getting off avastin and he said its still working as it should just that the Cnv have been flaring up. It seems to me that either the cnv are happening more often or that the avastin is now starting to not to work.
I also have really no idea how to plan for the future. It seems that this degeneration is just random and could all of a sudden make me legally blind. I have asked my Dr if i will go blind he said NO! But i don't really know what to expect. As i'm sure Dr consider actual blindness to mean something different than us laymen If i can't work and i can't see things centrally i don't really know what to expect from life. I own my own business and just this uncertainty is making me second guess every thing i do and every minute i spend.