I was diagnosed with Lupus and APS last May. I was told that both were mild and the APS is nothing to worry about as I'm not planning any more pregnancies! My rheumy is very much of the opinion that if the bloods are ok the Lupus is not active regardless of symptoms. My GP however thinks my Lupus is more active than my rheumy thinks. My symptoms I think are mild - mainly fatigue, brain fog and some joint pains that are tolerable. I have many questions - can the APS become worse? what sort of symptoms should I expect when the Lupus is not flaring? What exactly is a flare - will it feel very bad if the Lupus is mild? plus many more. I look at this forum a lot and have learnt much and had many questions answered. I'm sure it will continue to be a very useful resource (as well as the Hughes syndrome community). Can anyone recommend a book that might help as well?
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