Not Lupus but it is Sjorgrens Syndrome.

[jonesy1]

Just back from my appointment with my new rheumy who is very nice and listens. However he does say it is not Lupus but it is Sjogren's Syndrome, my lack of balance maybe vascular and I have got to have a bone density scan done in case of osteoporosis.

So good news I think?

[Thaddeus]

This is good news,

[JJKANE]

I have lupus and Sjogrens syndrome , I found out yesterday ....

But I never do anything by half measures

Keep smiling

JJ x

[Sekka in reply to JJKANE]

Hilarious! I always tell people that "I only do rare!"

As I have a list of autoimmune disorders plus a few surgeries which gave me a few complications friends would often say "now what!?"

Hang in there won't you?

Some days are good and some are not and sometimes

it's hard to get the right help. This is a great group to talk to. 💐

[lupylupus]

I have Lupus, Raynaulds, Sjogrens and Osteoporosis. It seems to be part of the course.

The treatment for Sjorgrens is the same as for Lupus.

If you always need to take a glass of water to bed at night and you have Lupus it's odds on that you will have Sjogrens!

You must be carful to make sure you use gel/drops in your eyes if they get dry to protect your eyes.

Hope you are feeling ok.

Margaret x

[Sekka in reply to lupylupus]

Me too! I'm going through the "yes I know I have Sjogrens but other symptoms indicate lupus as well" but as you know the treatment is the same!

I have good days and bad days but the fatigue is the hardest to deal with the IBS as well.... 🙄

[Anteater]

Hi, I have Sjogrens Syndrome secondary to Systemic Scleroderma and other auo immune diseases .... I have damage to my salivery glands and get the odd swelling in the Parotid Glands etc ... dry mouth, loss of taste, dental problems etc etc xx My eyes, well I have just had plugs put into my tear ducts to help prevent the drainage of the tears ... I noticed the difference almost immediately - my eyes shine, first time for a long long time, and I am not having to use the eye drops as often ... my eyes are not getting so dry, gritty or tired would recommend xxx

[Joybell]

I to have recently been diagnosed with this,just to add to my lupus, raynards, fIbromalgia and arthritis. It's nice to have a name to it all, shame it does not make it go away! I have no sense of taste at the moment and didn't realise that was something to do with all this, glad we have this site to help each other x x

[Sekka in reply to Joybell]

Yes it's a great support! xx

[Anteater]

There is also a site for Sjogrens Syndrome on Healthunlocked .....

[jonesy1]

Thank you for all your replies. I have been given eye drops and also had plaquinal added to my other medications. The reason my rheumy ruled out lupus was that at 55 he says I am too old to be diagnosed with this.

I also have picked up the cold that is going round and have no voice today.

Sue x