The chance to meet up...?

[Silvermyst]

As there are no meetings currently available to some of us, I was thinking of the possibility of trying to organise a get-together where we can meet up and chat for a while. This would be so beneficial for me and I am sure others too. And its a nice reason to get on the train and get out for the day

Venues suggested:

Leeds

York

Doncaster

Sheffield

Derby

Please, if you would like the opportunity to meet together with some fellow Lupies, reply and let me know when you would be able to make it, am thinking of March to give me chance organise as I have never done anything like this before

Thanks xxx

[mstr]

Yay to you for doing this:).....can't wait to put some faces to names (or real names as we will get to know each other. xx

[Silvermyst in reply to mstr]

Pleasure xx

[rooster53 in reply to Silvermyst]

Hi silvermyst, it would be great to meet

others. York or leeds is best for me.

rooster53.

[letslaugh63]

i think it's a brilliant idea silvermyst and hope u get a great result.i don't know if i have lupus and live too far away but good luck x

[Silvermyst in reply to letslaugh63]

Awww sorry you are so far away, not having lupus is no issue, we are all in a similar situation here but no two are the same x

[Ghogh77]

Yeah I'm up for that can do Sheffield and doncaster at a push

[Silvermyst in reply to Ghogh77]

Ok thanks for responding

[ebril]

Good idea but I live too far away for any of those destinations as I'm in Cardiff and don't drive

[Silvermyst in reply to ebril]

Sorry you are so far away, are there any support groups in your area?

[Paul_Howard Partner LUPUS UK in reply to ebril]

Hi ebril. The South Wales lupus group have meetings in Cardiff. I'll send you contact details in a private message.

[mishagirl]

I certainly would be interested in a meet up in Derby, there doesn't seem to be a support group here. Thankyou for suggesting this.

[Silvermyst in reply to mishagirl]

Excellent thanks Misha

[Paul_Howard Partner LUPUS UK in reply to mishagirl]

Hi mishagirl,

The East Midlands lupus group covers that area. If you go to their website you can contact them and see if they have any meetings coming up soon. eastmidlandslupus.org.uk/

[glen in reply to mishagirl]

Hi Mishagirl,

I also live in Derby.

how would you feel about meeting for a coffee or something stronger!

[uzi41]

Sounds great...maybe im too far to as i am in London.....xxx

[cantello in reply to uzi41]

Uzi41 I live in London and hope to catch up with people there - (if you are i terested) - but I could do Derby if that works for people - either train or drive. If anyone is interested in travelling to Derby and there is enough for a gathering let me know.

Also anyone in the Reading/Thatchem/Newbury area of Berkshire that want to meet I am happy to arrange that too.

[uzi41 in reply to cantello]

Hi i live in Merton....would like to meet if a group can be organised...take care... Uzi..

[Petrof in reply to uzi41]

Hi Uzi41,

look up the post Anyone living in the London area? Meetup and get out :)The meeting in London is being organised by Leisha, hope you can make it.

[Silvermyst in reply to Petrof]

Yay, you guys in London are sorted xx

[Silvermyst in reply to uzi41]

Awww so sorry you are so far away, but I am sure there are groups in/around London that you could attend, maybe worth sending Paul a message to find out

[uzi41 in reply to Silvermyst]

Thank u maybe will venture out one day..x. Uzi

[Paul_Howard Partner LUPUS UK in reply to uzi41]

There are quite a few groups in London that meet regularly. Whereabouts in London are you and I can tell you where your nearest group is.

[uzi41 in reply to Paul_Howard]

Hi i live in merton...wud love to meet up with others wuth lupus... Thanx. Uzi

[Paul_Howard Partner LUPUS UK in reply to uzi41]

Is that the London Borough of Merton in South London? If so, the South London group is nearest to you. They tend to meet in Croydon. If you'd like I can send you their contact details?

[uzi41 in reply to Paul_Howard]

I live in raynes park, merton...s london... Any details would be great. Thank you.. Uzi

[Paul_Howard Partner LUPUS UK in reply to uzi41]

I'll send them to you privately now.

[sollyn]

Lupus UK, run what they call coffee and chats, I would recommend getting in touch with them as they have leaflets and guidelines and advice for these things. I help with the plymouth coffee and chat. We meet in a local hotel lobby. Very pleasant, easy parking and quiet enough not to be too distracting. You also get good parking and access.

I hope this helps. It is good to have the back up.

Good luck.

[Silvermyst in reply to sollyn]

Fantastic info, thanks Sollyn, I have heard of the support groups but not coffee and chat. Have sent a message to Paul to get more info. Thanks again

[jennyhe]

anyone in the Poole region I would be happy to meet up with

[Paul_Howard Partner LUPUS UK in reply to jennyhe]

The Dorset lupus group have an event coming up in Poole. You can find the details here - dorsetlupus.com/localevents...

[hazelHollingsworth]

Hi - Yes I'm up for one in Sheffield, but none of the others as 'my body' won't let me at the moment. Good luck.xx

[Silvermyst in reply to hazelHollingsworth]

Thanks Hazel

[hollyhock]

Thank wouldlove to but live in Somerset, would love to meet anyone who lives nearMineheadfor coffee and chat,good luck for good meetings great idea xx

[Paul_Howard Partner LUPUS UK in reply to hollyhock]

You may like to contact the Western lupus group who are around that area - westernlupus.org.uk/

[hollyhock in reply to Paul_Howard]

Paul thank you so much for the information,will look straightaway

[Smartcar]

Possibly south of Sheffield, maybe Chesterfield?

[Silvermyst in reply to Smartcar]

Think its more likely to be Sheffield, hope you could still make it

[Smartcar in reply to Silvermyst]

Let me know where and when and I will try to make it. Thanks

[Silvermyst in reply to Smartcar]

Wonderful

[max1979]

Any meetings in birmingham?

[fabwheelie in reply to max1979]

West Midlands Lupus Group (WMLG) have an afternoon "drop in" meeting at Dudley once a month westmidlandslupus.co.uk/lup... and annual meeting at Warley (usually in the spring)

[max1979 in reply to fabwheelie]

Do you know if there is anything more local as i dont drive.

[Paul_Howard Partner LUPUS UK in reply to max1979]

Hi. If you contact Yvonne through the above website she'll be able to let you know if there are meetings nearer to you.

[MaximumRide]

I am so far away from all of you in Scotland

[Lupylass in reply to MaximumRide]

Hi Moira. Lupus UK have Regional contacts in Scotland with some regular meetings taking place. Contact Lupus UK and they should be able to put you in touch with your nearest contact. There may be a group near you!

[Paul_Howard Partner LUPUS UK in reply to MaximumRide]

We do have groups in Scotland. Whereabouts in Scotland are you?

[MaximumRide in reply to Paul_Howard]

I'm in Dundee, I dont drive(which makes it more difficult) and thought that the support groups are in Fife - which is not really good for me. Bus is the only way to get there and the UV lights make me sick

[Paul_Howard Partner LUPUS UK in reply to MaximumRide]

I know there are meetings in Fife, but a lot of groups also have smaller meetings scattered around. If they don't have one at present, they may be able to help put you in touch with other members close to you. Would you like me to send you contact details for your nearest group?

[MaximumRide in reply to Paul_Howard]

hi Paul, sorry for the delay. yes please. Any help would be great thanks again

[Paul_Howard Partner LUPUS UK in reply to MaximumRide]

I'll send you a private message now.

[Silvermyst in reply to MaximumRide]

sorry Moira...

[MaximumRide in reply to Silvermyst]

Its alright I will just stay on here x

[Shanti]

Hi great idea I live near Derbyshire can travel please keep me informed when you know more

[Silvermyst in reply to Shanti]

Excellent, thanks Shanti

[ribitribi]

So so so soooooooooo jealous!!! I live too far away... Athens, Greece :((

But you all have a great time and enjoy the meeting :)))))))))))))

Have a pint for me! Cheers xxx

[Silvermyst in reply to ribitribi]

Oooooooh no cancel Sheffield, we'll all go to Athens instead ;D xx

[angus50]

Hi

I think this is long overdue I really would love to meet up with others just for a coffee and a chat. It would be brilliant I live in Essex. I know there are group meeting but being medically retired what about the long lonely days we all spend it would be lovely to once a week catch up and even help out someone who is struggling that young lady who posted a while ago who has small children I would have loved to have said I'm on my way to help. I am sure I am not the only one who feels like this am I?

[Paul_Howard Partner LUPUS UK in reply to angus50]

Hi angus50, we do have a coffee and chat meeting in Romford once a month if you're able to make it? You'd be most welcome.

[Silvermyst in reply to angus50]

I understand you completely, I too would like the opportunity to get together with others, maybe even offer a listening ear to those recently diagnosed... I have been doing this an awful long time (diagnosed in 2005) and I have never met a single person that also has Lupus... Time to change that I think

[Silvermyst]

Hi Roo, got your details thanks, going to try and work out a plan so will blog when I have more information.. Thanks for your interest

[smkelly]

would love to meet up, new to here and going through tests to see if i definitely have lupus so not yet confirmed. I live in durham so any of the places up this way would suit, york leeds etc. would be nice to have some support / provide support after all i'm sure most of you guys know more than the doctors !

[Silvermyst in reply to smkelly]

Lol probably! Great to have you on board Could you please send me a pm with your email address so I can contact you with updates? Thanks x