Twitching!: I suffer a lot with muscle twitching... - LUPUS UK

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Twitching!

jennywren444 profile image
11 Replies

I suffer a lot with muscle twitching, especially through the night, to the point where my husband has to get out of bed as I'm keeping him awake. I've not heard much with regards to lupus and twitching so just wondered if anyone else has this? X

11 Replies
megs_tom profile image
megs_tom

I too suffer with twitching. It gets worse the more tired I am or if I am anxious. I don't know if it connected to lupis or not, just another symptom I am learning to live with! Take care xxx

hazelHollingsworth profile image
hazelHollingsworth

I don't get it but my daughter does, a friend of hers told her to try Magnesium tablets, she takes 2 twice a day and it seems to have solved the problem. She has not had the problem for the last 5 months that she has been useing them. It might be wise to ask th Pharmasist if it will 'alter' how any of your medication works. Goodluck and I hope you and megs have a twitch free Christmas and New year. Hazel.xx

megs_tom profile image
megs_tom in reply to hazelHollingsworth

Thanks for the advice, will look into those! :-) merry christmas! Xxx

brave profile image
brave

Absolutley.......i sufferd for 18yrs with muscle twitching ,so weird ,cos sometimes i can be sat watching tv and my thumb starts jumping all over the place ,i get it it almost every muscle in my body ,and im convinced thats why my heart has irregular beats ,its all to do with nerve impulses being fired at the wrong times.....or ...i reckon its normal with this disease ,our systems are completly out of whack .It used to worry me ,but now i just deal with it ,i saw a neurologist yesterday ,he sending me for nerve testing ,but apart from that the appointment was a complete waste of time,i think were are own consultants half the time ,drink camomile before bed and use lavender oil ,and a large brandy ,works for me x

Sher78 profile image
Sher78

A lot of us lupoids get twitching & muscle spasms as well as 'Restless legs'. If it's in bed & more so in u're legs, something I find that REALLY helps me is absolutely covering my feet in moisturiser & sleeping on some socks, it seems that the moister they r, the less my legs tend 2 go ;0)

Sher78 profile image
Sher78

unfortunately, never found anything 2 work 4 my arms or anything :0(

Sher78 profile image
Sher78

Oh, & some meds (especially anything used 2 help with sleep) can make them worse ;0)

megs_tom profile image
megs_tom in reply to Sher78

I get bad restless legs. All the time. Drives me up the wall. But certainly think the amitriptyline makes the twitching worse! But when it comes to sleep vs twitching I would much rather have the twitching if I have sleep than vice versa! Xxx

jennywren444 profile image
jennywren444

Thanks guys, nice to know it's not just me! Guess my hubby will have to learn to live with it, either that or get a sofa bed! Ha ha. Will give the magnesium tablets a go, I'm on so much medication it can be hard to tell which is the illness and which is side effects! Merry Christmas x

Sher78 profile image
Sher78 in reply to jennywren444

I regularly volley my other half in the night but then again, he snores so I think we're even there ;0) Try the moisturiser trick. I always moisturise after a bath/shower & make sure I do my legs & absolutely slather it on my feet b4 bed. It really seems 2 work 4 me :0)

DaleDiva profile image
DaleDiva

This is how I was diagnosed! I was refered to a neurologist because of twitching (my eyebrows are a life form in their own right) clumsiness, dizziness, migraines and after lots of tests he diagnosed Lupus affecting the central nervous system. Prior to this I had had long term MCTD. I am waiting now for the rheumy to start treatment. In a way it's a relief as I have a manageable diagnosis and the other alternative diagnoses where a brain tumour, MS, Huntingtons Chorea.... maybe Lupus aint so bad!

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