Hi there....i have been hovering for some time now, so apology's im diving straight in with a question!
I was diagnosed with Lupus SLE in August 2006, sadly i had severe pre-eclampsia & my daughter had to be delivered early at 25+2 & she passed away at 3 days old
After her passing i had my bloods tested & it came back that i was borderline SLE which was brought on gestationally...which makes sense now as i have had 3 early miscarriages, mid term loss at 18 weeks gestation with a baby girl & my daughter who was delivered prematurely.....
i was diagnosed "just in time" as i was PG with my DS who is now 5 years old, so at 8 weeks PG i started injecting with Clexane until after my PG & then again with my youngest son 7 months later....i am blessed to have 2 precious DS's all thanks to Clexane & low dose Asparin.....since 2008 my SLE has been in remission, but i have fibromyalgia which sadly has left me more dibilatated & im on high dose meds due to that...i see my rheumotologist twice a year & they check my bloods...my rheumy says that my SLE will return, when i hit the menopause if not before, because its thriving on my hormones.....has anybody else been told this?
Despite being in remission i am still very much treated as though i have Lupus....apart from my Fibromyalgia, under active thyroid & insomnia i am absolutely exhausted, more so than normal.....if my bloods come back as still in remission, does that mean that i won't get any of the symptoms of the Lupus, that everything should be put down to Fibromyalgia??
I hope my post makes sense....thats the Fibro-Fog for you, im all over the place lol
Thankyou for reading x