Hi. My GP has considered Lupus as a diagnosis for an illness I have suffered for over 3 years. I have confirmed POTs, anaemia (B12 every 3 months) and what they have been calling post viral syndrome for a while. Elevated ESR, and almost all of the symptoms listed on this site (but not the facial rash) but he is not confirming this diagnosis as my ANA is showing as 'normal'.
My GP has put me on doxycycline 100mg for 4 weeks to see if it has any effect on the ESR. It's not going to be an easy month as under a week in I am sick and hurting even more than usual, but I'm in for the long game and happy to stick with it if there is light at the end of the tunnel.
I have found another website: roadback.org/index.cfm/fuse... which suggests this can help Lupus patients...
is anyone else taking/taken this and did it benefit you??