myself

[brookes]

i suffer with dle .sle with joints pain i would like to share with anboby who suffers as well i ended up with rynards as well

[brookes]

as a suffer i get depressed and have to go in hospital every week for aiiprost infusion the drip is 10 hours long i wish to invole my self with others like me

[Hidden]

hi welcome hope you find this place supportive

[brookes]

i hope so

[Jude65]

Welcome to this site and I hope you make some friends here. I am sorry that you get depressed - that's rotten.

What it that infusion? I have never heard of it before.

I do hope that you are having some good days.

[chrisj]

I googled this infusion as I'v never heard of it either Jude and its to do with opening the blood vessels to help circulation. Says this on arthritisresearchuk.org...

"It's a man-made version of prostacyclin, a substance which naturally occurs in your body. It improves the circulation of the blood. Epoprostenol is another version of iloprost". Some useful info on that web site.

I have raynauds brookes but its not as bad as that, and since I've taken my meds things have improved. I have amitriptyline for depression, my lupus doctor prescribed it for sleep deprivation and its helped....hope things get easier for you..

[Jennie73]

Hi brooks, as well as Lupus I to have raynauds and also scleroderma amongst others,I also go into hospital for iloprost and i hate it makes me ill its not been working for me for a couple of years had it in november not been to bad so keeping my fingers crossed its worked this time,at the moment my Lupus is causing a lot of problems good luck with it all xx