Recently been having a lot of flare ups. I was diagnosed 5 years ago this year and gone through a cocktail of drugs. Since being off short term steroids the flare ups been more regular. Am now on quite a rare drug called Tacrolimus alongside Hydroxychloroquine. But does not seem to be doing the trick!
Since leaving school I have struggled to keep jobs because of having long periods signed off work, at the moment I am working for my dad which is a god sent really as he understands more and wouldnt get rid of me for being ill. So today I wonder what my specialist will suggest? Fingers crossed an answer will arrise today...