Lupus in the family

[Eirlys111924]

I was diagnosed with Lupus / differentiated connective tissue disease at 64 having having to go privately to a Rheumatologist . Looking back at my health history it all made sense .I originally went to the Rheumatologist as my feet were so very painful .I was Commenced on Hydroxychloroquin .

I am one of four girls and 3 out of 4 of us have been diagnosed with lupus .My mother although undiagnosed died at 67 in 1991 and I am positive it was lupus ,she had every of the worst of the condition . So two weeks ago my 16 year old granddaughter had bloods for several conditions and the Lupus marker was positive ,she has a repeat blood test in 3 months . This blew my mind I am so upset .So I wondered if anyone out there has the same strong Family History ?I wonder if anyone has any knowledge of studies done on families like ours .

[LalSD]

HelloI am so sorry to read your note.

I am almost certain my granddaughter almost 2 years old might alsohave it given the early symptoms. I have Lupus and my both daughters have it, too.

Although medics say it's not hereditary, it is if notLupus, auto immune conditions are in my opinion. I am very sorry about your grand daughter's diagnosis. Having said that a good diet and stable life would make all the difference.

With best, L

[posthinking01]

Hi there - there are research projects that look at family connections or there were when I was first diagnosed - I don't know where you live but I will ask my consultant in early December when I see him and ask him if there are any projects on at the moment - in the days when I was asked to participate the researchers from the hospital in London would come to your home and take bloods of all the family members. Unfortunately my brother refused to co-operate so I was unable to go further which was a shame. Please keep an eye on your thyroid levels if they drop to the lower end of the scale - (T4 hormone) as over 25% I believe the figure is - of Lupus patients have thyroid problems too and I know I did and most of my horrendous symptoms were due to this problem and got better when I started on treatment. Hope this helps?

[StriatedCaracara]

Agree with LalSD environment also plays an important part, in terms of how symptoms develop. Linking in to post with recent Lupus Foundation of America video on research into this

Research mentioned that found a relationshiip between exposure to cigarette smoke and higher anti dsDNA . So now I'm avoiding cigarette smoke.

Then there is silica dust, infections stress the list goes on.

As we know positive bloods on their own would not necessarily mean lupus, symptoms need to have developed too.

healthunlocked.com/lupusuk/...