Finger and feet pain any advice/hints/tips please! :)

[Angie245]

Anyone get severe finger and feet pain? It’s driving me insane! Any hints or tips? I’ve started wearing gloves as they start by getting so cold and then begin to go numb/tingle. My feet burn. I try to remain as active as I physically can but it’s causing me to limp bad because it hurts so much.

[PMRpro]

When you say "they start by..." do you mean this is just occasional or is it constant? Do your hands/feet change colour?

[Angie245 in reply to PMRpro]

It’s pretty much all the time they feel sore a lot of the time... I might have an hour or so where they are ok. Then they become very cold and begin to really hurt. I’m starting to drop things at there worse. I’ve found heat helps a little. Not sure if it’s circulation or SLE related. My fingers go pale but not the same I’ve seen in images of Raynards because that was my initial thought.

[PMRpro in reply to Angie245]

I was thinking Raynauds too - but the pictures are usually only typical of some fairly extreme cases, it does vary. What does your GP say? Do your feet and hands go red when they burn?

[Angie245 in reply to PMRpro]

No just pale... the GP and consultant think it’s all nerve related and the bulk is affecting the whole of my nervous system. Just feels so much worse in my feet and hands and is slowly becoming worse. I’ve had more bloods and due to see the consultant again in March (end). When I go I might ask for a referral to a neurologist and see if they can help. (I’m assuming maybe wrongly they deal with nerves/pathways or is it just brain...)

[Sue6]

Gloves are good you need to keep your blood temperature constant. I use omega3 or cod liver oil to support the joints and exercise my joints every day. It will be painful at first but slowly it does loosen them up. Also I found cutting out wheat has helped the most.

[Angie245 in reply to Sue6]

I’ve started taking COD liver oil a few weeks ago. As well as a multivitamin and glucosamine to try and help. I’ve also cut out processed food as best I can but not wheat so I’ll give it a try! I’ve started to wear gloves but feel like a wolly when it’s been warm and I’m sat wearing gloves but needs must!! Thank you! xx

[Cas70]

My feet burn at night so I cut Deep Freeze pain pads in half and stick one on each foot. They have Heat Pads too. Rub Olbas Oil on your knees and ankles that helps. Good luck, nightmare isn’t it?

[Angie245 in reply to Cas70]

It drives me insane! I’ll try both thank you! xx