Collating members posts about Zentiva: Hello lupies... - LUPUS UK

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Collating members posts about Zentiva

kt11 profile image
kt11
15 Replies

Hello lupies

Just a quick one . This Zentiva issue is a nightmare.

What would you think about collating posts , not displaying names obvs, and sending them to radio programmes, newspapers and I guess Pharmacy wholesalers themselves as they are the problem.

Any administrators out there, do you have advice?

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kt11 profile image
kt11
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15 Replies
happytulip profile image
happytulip

This is the sort of thing that gets discussed on Radio 5 live in the morning or the Jeremy Vine show on BBC radio 2. Local newspapers or the BBC Health correspondent may be able to help.

dg70 profile image
dg70 in reply tohappytulip

Can't hurt. The replies I got on the thread of this last week were frustrated and so sad. We should not be going through this every couple of months but as it stands the ring round chemists is the only way to get zentiva or any make of hydroxy at the moment.

cobsie profile image
cobsie

I gave Zentiva a few examples of how people feel and have been given the runaround- no identification obviously. Interesting that someone else phoned Zentiva and was told they had made an agreement with Boots. I suspect that will be a price incentive to supply their product. Be nice if all this meant we could have less stress and worry

Gardenpots profile image
Gardenpots

what have we got to lose I’m happy to be involved. There seems to be a lack of understanding on the part of some of how brands other than Zentiva affect us.

GloomyEeyore profile image
GloomyEeyore

It took me ages to find a pharmacy that had Zentiva. Finally got it from Well pharmacy. They assured me they can get it and so far they have but it has only been two months. When I was having trouble I phoned Zentiva. They assured me there was no problem with supplies and that a pharmacy can phone and order from them direct. My old pharmacy refused to do this despite my prescription saying must be Zentiva. Had to go two weeks taking only half a tablet a day until I managed to get my prescription honoured.

kt11 profile image
kt11 in reply toGloomyEeyore

I'm really pleased you are able to get Zentiva. My problem is I don't drive and public transport where I live is not good. I'm seeing my GP on Tuesday to ask for a prescription for a batch and hope the local pharmacy to honour it

GloomyEeyore profile image
GloomyEeyore

Do you have must be Zentiva on your prescription? If so the pharmacy has to give you that brand. Xx

Poshcards profile image
Poshcards in reply toGloomyEeyore

No they don;t! It states on my prescription 'Zentiva Only' yet I have great trouble getting it. If the pharmacies distribution warehouse don't supply now then you won't get it x

GloomyEeyore profile image
GloomyEeyore in reply toPoshcards

They do unless there is a severe shortage of the medication. According to Zentiva there is no shortage.

sps.nhs.uk/articles/prescri....

Screenshot

Hiya, I had the same problem last week when I picked up my Hydroxychloroquine and they gave me a different brand Not ZENTIVA, which is in capital letters on my repeats! So I asked for a prescription so I could get it myself. After phoning 6 different pharmacys , I found some but it really is something that I could do without. The last thing that I want to do when I am tired and I have had to explain sooooo many times! Cx

kt11 profile image
kt11 in reply toRiselikeaphoenix_123

It's so tiring! Could you get a prescription for a couple of months worth and go back to that pharmacist? It would give you a breather before the next round of tours around chemists. My MP is waiting to hear from the health board, fingers crossed. All the best! x

Poshcards profile image
Poshcards in reply tokt11

my Gp will only give 4 weeks of anything each time x

kt11 profile image
kt11

yes I do, the pharmacist just gave me ipco, on the label on the box it said 'Zentiva only' 🙄 xx

lupie-Cathy profile image
lupie-Cathy

I have had to have quinoric for months as the pharmacist isn’t allowed to order it as their supplier won’t get it in. It’s ridiculous, who is allowing the supplier to get away with it when law says if you have that brand on your prescription that’s what you should be given! Is it the NHS or the Drs or who?

kt11 profile image
kt11 in reply tolupie-Cathy

I've messaged my MP, I'm so sick of this, x

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