photosensitivity study

[hunkyd0ry]

Hi all,

I am following a thread about light sensitivity in the SRUK (Scleroderma & Raynauds UK) forum with great interest and would like to learn more about it, hence, upon advice of another SRUK member I have joined your forum too. (scleroderma and lupus are sometimes linked).

I am a lighting designer by profession for 14 years now and have to admit that I haven't really come across the subject of light sensitivity before.

Our main concern within the industry seems to be all about circadian rhythms right now... hence boosting workplaces, especially the ones without daylight access, with even more light!

About 2 weeks ago when I went for one of my hospital check-up's, I found the department reception desk (no daylight access!) in almost darkness. Doing the lighting design for these kind of places and always having to make sure to achieve certain lighting levels to carry out the relevant tasks within a space I was surprised to find people working in this dim reception, so I ended up having a chat with them. Two of the female staff did complain about their migraines being triggered by the lights there.

And now those bits of light sensitivity information keep finding me and intruige me to look into further. So I ended up here.

Hopefully by understanding this subject better I could make some kind of contribution by bringing some more awareness into the world of lighting design professionals that design the lighting in your workplaces.

Would you be willing to help me by answering a few questions for me?

Edit:

I have put a questionnaire up onto Surveymonkey, the link to which is here:

surveymonkey.co.uk/r/98GVBQW

If you could help me with my research about lighting sensitivity by answering the 9 questions, I would much appreciate it!

Thank you!

[Happykins]

Hi, yes I'd be very interested.

[Krazykat26]

I'm interested. 💜🌈Xx

[Tiggywoos in reply to Krazykat26]

hope you have lovely weekend with your sister 😘👯‍♀️xx

[Bettina1865]

I'd be happy to answer any questions too

[tjo52]

Yes,more than happy to.

[Spotty-ewe]

Yes, as I’m very photosensitive at present I’d be more than happy to help.

[Danimccrea]

Hi I would be happy to help you. 😊

[SurferGuy]

I too am happy to help

[Tiggywoos]

me to

[BrigidsFire]

I’d be happy to answer too. I’m also autistic so have photosensitivity because of that too.

[Clairedown]

very interested and happy to help

[hunkyd0ry]

Thank you everyone!

I will have to do some homework first to see how I start this. Likely this will start with a questionnaire to get an idea of percentages of age groups, gender, background / linked conditions / type of lights that cause the problems, etc.

I am new to the subject of light sensitivity tbh and also their link to the underlying condition(s)... so if you lovely people have any other particular points that you think would be relevant / should be included in the survey/questionnaire please let me know.

Thank you!

[RosieA]

Yes, happy to answer and contribute if appropriate.

[JenniferW]

I would be happy to contribute. When our office's lights were updated a few years ago it reduced my tiredness at the end of the working day. However some other members of staff found the glare and brightness from the newer lights harder to cope with.

[hunkyd0ry]

Hello again. I have put a questionnaire up onto Surveymonkey, the link to which is here:

surveymonkey.co.uk/r/98GVBQW

I would be very happy if you could help me with my research about lighting sensitivity by answering the 9 questions. Thank you so much!