Hi ,
I had my first Rituximab infusion on 10th and then again on the 24th March.
I’ve had numerous types of tablets / injections but unfortunately all had failed.
I feel like my lupus & RA is just as bad as ever if not worse.. extreme fatigue, swollen hands, feet elbows just about every joint in my body is in pain. I’ve mouth ulcers which I haven’t had in a while. It feels like a never ending cycle. I’ve also noticed very dry / gritty eyes which seems to be new for me
I felt great for a few days (max a week) after the steroid infusions.. but once that wore off I just felt awful.
Realistically what is a good timeframe to gauge if this has worked? One nurse told me a month another told me 4 months
also on hydroxycloroquine 400mg & daily steroid 5mg
One frustrated girl here 😟