Brain fog and lack of concentration : Does anyone... - LUPUS UK

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Brain fog and lack of concentration

0105luppyabby profile image
14 Replies

Does anyone with SLE lupus suffer with brain fog and trouble concentrating?

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0105luppyabby profile image
0105luppyabby
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14 Replies
Ophelia1 profile image
Ophelia1

Hi there - My most troubling symptoms with lupus are brain fog and difficulty concentrating. I also experience a myriad of other symptoms, but I could live with them if I didn't have the brain fog etc. It makes work so problematic. To date I haven't found anything which helps. Have you?

0105luppyabby profile image
0105luppyabby in reply toOphelia1

No as only just realised it’s the lupus causing it as recently been making silly mistakes at work and when watching a film have no idea what’s going on as my minds not focusing.

Ophelia1 profile image
Ophelia1 in reply to0105luppyabby

With me it's not films, but books and reading. I used to love reading, particularly fiction. Now I can't read fiction at all, but I can focus somewhat on non fiction. However, funnily enough I can listen to fiction on audible, so reading seems to be the issue. Lupus is such a weird disease!!!!

Paprika60 profile image
Paprika60 in reply toOphelia1

This is the case for me as well! It is very odd.

0105luppyabby profile image
0105luppyabby in reply toOphelia1

I’ve just ordered some ginkgo bibola supposed to help with memory and concentration, I’ll report back if they are any good

MusicalFurbaby profile image
MusicalFurbaby

Hi Ophelia, absoutely! You’ll be hard-pressed to find a lupie who does NOT suffer with brain fog and concentration difficulties. ☺️ For me, I think it’s a direct result of the constant fatigue. Pain and headaches make it hard to concentrate too, not to mention if I haven’t slept well the night before. Add to that any acute problems - chest pain, problems breathing, frozen limbs - and my concentration goes out the window.

The only thing that helps is cutting myself some slack - which is the hardest thing for me to do! But if I can’t concentrate, I may as well take it easy, because pushing myself certainly doesn’t help. Nor does beating myself up. So I slow my pace right down, reminding myself that working slower than normal, and getting less done than normal, is better than getting zero done. Be kind to yourself - it’s not your fault. 🌻🌈❤️

Ophelia1 profile image
Ophelia1 in reply toMusicalFurbaby

Oh to win the lottery and to be able to leave work behind :)

Geeforce99 profile image
Geeforce99

I can relate to all you issues. just to do few hours at work is really hard and work colleagues make it worse making comments take care 😃

WinterSwimmer profile image
WinterSwimmer

Probably all of us, I should think.

Poshcards profile image
Poshcards

oh, yes, really bad for remembering things this week and concentrating on one thing, had over 30 years of this xx

jilk profile image
jilk

starchy. carbohydrates can do that with anyone. i cannot drive a car if i have had a starchy food' You addictive foods give the most trouble

Paprika60 profile image
Paprika60

Acupressure head and neck massage boosts blood circulation and I find it helpful. A mindful speedy walk as well. Are you on Hydroxy? I have lowered it from 400mg to 200mg and found it lessens brain fog for me. I weigh 58kg so doctor should not have prescribed 400mg I think. I also rest my eyes. I find it helpful.

0105luppyabby profile image
0105luppyabby

I had a bad reaction to hydroxy so just use steroid cream

Djlr profile image
Djlr in reply to0105luppyabby

TYLENOL 8 Hour ARTHRITIS (or Off / Generic Store Brands)

650 mg each pill - take 2 @3x a day

(1300 mg -= 3 x a day)

These are “helping quite a few LUPUS FRIENDS” w/JOINT PAIN & other issues (especially those not able to take HYDROXYCHLOROQUINE

Acupuncture & MASSAGE - both are great PAIN RELEASE, muscle relaxers & STIMULATING GOOD BLOOD FLOW to JOINTS, etc for better functioning

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