methotrexate

[CREATIA6_]

can you please tell me what are your experience with Methotrexate medicine? Thank you

[Hamptons]

my mother in law has found it life altering. Less joint pain and swelling and felt healthier. Her liver levels fluctuate but are monitored.

sister is taking it and whilst it makes her feel sick she has found it has zapped symptoms.

I did not do well on it. I had increased pain and swelling, reduced mobility and felt awful. Liver levels raised and I was nauseous for days after taking it. My time on it was short lived.

[HazelW]

It has been an absolute godsend to me. Really kept my symptoms under control & have had no bad side effects. I know it doesn't work for everyone but it has proved a life saver for me.

[MonicaT]

Hello. I find it helps. Takes a bit of getting used to in the beginning with the nausea etc. But I learned to make sure I have a good meal before taking and take with as much water as you can drink. It helped me with the nausea. It helps with swelling of joints, and other lupus symptoms. You can only try things. If they dont work there are other meds. Good luck xx

[BK47]

I felt very nauseous when I took it so switched to injections. I only took them for a few months and my nails went brown so I stopped altogether.

I didn’t get on with it at all. Sorry but that’s my experience.

I’m sure it’s great for others. We are all different. Good luck with yours x

[Cwmtaf]

My husband takes it. Life changing. Could barely move before, shoulders very painful and no energy. Now hugely improved. Nausea manageable but he says worth it.

[Krazykat26]

I've been on Methotrexate for three years. Started on 12.5mgs n now I'm on 17.5 mgs. I take it in tablet form.Apart from initial side effects which were some numbness in my left hand, bit of visual disturbance and a slight headache I have no problems taking it. It's been a life changer for me..my skin is much better..I have more energy n joint pains are diminished. The beauty of it is that we take it once a week! If you decide to go ahead I would suggest that u take it on a day when u don't have much to do..for instance I take mine in Sunday morning. Your doctor will also prescribe Folic Acid which is taken every day EXCEPT the day u take the Mtx..that's what I'm on anyway. You'll also have regular blood tests to check that you're tolerating it ok. I had to go every two weeks at first n now I go every month.

Good luck 🍀I hope it helps you too 💜🌈😽😽xx

[svfarmer]

hi I’m on 25mg of methotrexate injection once a week, I tolerate it very well and have had no side effects whatsoever , it has helped my joint pain alot x

[JamieWth]

I could not tolerate the tablets due to nausea so tried injections. They helped with the symptoms but gave me one day a week after injection where I was completely knocked out. My “doh” day I called it. I stopped it last December and started sulfasalazine which has been wonderful.

[Trixie01 in reply to JamieWth]

Exactly the same with me!! The day after the injection I feel terrible.

[HantsMan]

Hi I was on Hydroxychloroquine which I tolerated as was newly diagnosed for over a year but after a year of several side affects I asked my consultant if there was any chance of moving to something different and she put me onto methatrexate with folic acid... What an improvement! Its a once a week dose, but for me, has been a game changer, I have energy, sorry I should say l have some energy and yes on the day I have to take it easy, but no major side affects for me. However when I decided to stop it, for covid jabs, extreme fatigue returned and was only able to be off them for 5 days. So reminded me that I was a very ill person and was glad to be back on them... Prob too much sorry.