Methotrexate

Ive been on this for 4\5 months and my hair is coming out but not has much has before med its calmed down don't be scared because the benefits for out weigh the side effects I feel great

Hi Lisalu, I agree with Diane46, my flare ups were causing more hair loss than the methotrexate ever did! These drugs are very expensive and your consultant would not have prescribed them unless really necessary. Give them a chance and try not to worry too much as stress doesn't help any of us. Good luck 😀

I do have lupus but am not on methotrexate myself, but I know 2 people who are on it. One has had lupus for 10 years and has struggled with various lupus symptoms including hives and very reactions to the sun. She has tried lots of medications over the years with not much luck. She started methotrexate last summer and says this is the best she has felt for years. She swears by it. The other person I know takes it for juvenile arthritis - by weeky injection. Been on it about 18 months. Again swears by it. For these 2 people, the pros definitely outweigh the cons. I hope it works for you too. Best wishes.

Hi im in my 5 TH year of taking methotrexate and its a God send, it does take roughly 6 8 until u feel the benefit, I take mine Monday eve 930 make sure u dont take it on an empty stomach as its not good on ur stomach, I also take domperidone for the sickness and omeprazole for your stomach and a must is folic acid twice a week,I also take 300 mg plaqunil,Never take them borh together ur stomach wont allow ull be straight inthe toilet nobody tells u this i found out the hard way, hope.Ive helpedx

I have a diagnosis of RA (have you tried asking this on NRAS HealthUnlocked too as most people on the RA community use Methotrexate at some stage?). I was on Methotrexate for two years by pill and later by injection. It worked fairly well for my RA and I did suffer plenty of side effects including to my liver but I never suffered any hair loss at all. I did have alopecia several times as a child and young adult so this was one of my great fears but it really wasn't realised at all. Good luck!

Hi Lisalu

Just to reassure you the doses they use for Methotrexate are much lower for our illnesses than for cancer treatment. When I took it it so helped the arthritis and stopped my hair falling out. It can take up to 3 months to work so patience is needed which is hard when we're I'll. Good luck I hope it works well for you. X

I think the folic acid dose must be different for different people. Some people take it daily, others twice weekly, i take it just once a week. Tho i ran out once and didnt notice a difference.

As many have said, it truly is a Godsend. I have been on methotrexate for three years and am on the maximum dose, with folic acid weekly and It makes a huge difference to my life. It does take time to kick in, but once it does, the benefits are very noticeable, and my hair had thinned, but is much thicker now. Good luck and I hope you will keep us in the loop as to how you progress.

I have lupus and been taking methotrexate for around 2 years. Not sure if it is the meds or lupus but, I have no body hair at all from neck to toes. Hair on head got a little thiner. I did not loose enough to tell it. I look at the bright side, I don't have to shave or get brazilian waxed now.

Hi Lisalu l have been taking methotrexate for 3 years, and have been taking folic acid once a week. Luckily my hair has not fallen out, in fact it was falling out more before l took methox. For me it took a few montgs to get the full effect, but worth waiting for. I take 17.5mg weekly. Hope this will help you. Good luck let us know hiw you get on with it.