Hi everyone, well after 6 months of inexplicable and disabling breathlessness, I’m finally improved to the point I can return to work. I’ve been doing reduced hours working from home, and this week I’m going to attempt to return to my normal hours, but still working from home as I’m still quite immunocompromised. It feels good to be getting a little normality back into my life, after 6 months of despairing that my career was over and I’d never be able to work again!
They never found out the cause of the breathlessness. They never diagnosed me and there was no treatment plan. I just started, very slowly, to get better on my own. Very mysterious, and I’m still a bit nervous about the fact it can happen again without warning, coz I still don’t know what it is or how to treat it! But I guess we are all living with that kind of uncertainty, right?
The other thing is while I was off sick, my beautiful furbaby died. She was such a comfort to me in illness, and I’ve had a hard time coping without her. But we are planning to get another furbaby, hopefully very soon! I’m lost without a cat to cuddle 😻😻😻 How do you guys cope without your pet?
You’ve all been marvelous over the past 6 months, thanks for all your support 🌻🌈💕
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MusicalFurbaby
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oh my goodness I am so so sorry to hear of the loss of your fur baby 😢. I know how it feels .. literally like your heart is breaking in 2 💔 .
When I did get another one I initially felt guilty but then the love you have for them overrides those feelings . Knowing you gave them the best possible life too is a comfort I’m sure .
Brilliant to hear things have improved a little but do go steady 😘xxx
Thank you Tiggywoos, yes it’s a comfort to know I gave my rescue cat a comfortable life filled to the brim with love. Looking forward to getting the next one—there’s quite a void in my life without a furbaby! Thanks for the reminder to go steady too, I always need to hear that 😁
Thanks Meg, they really are! Yes, I am trying to take my recovery in my stride, as you say. Part of me is excited to be getting back to normal, so I wanna throw myself into it! I have to remind myself I am still recovering, I’m not fully recovered yet. ☺️
aww I had the breathlessness for over a year I’m still not 100 percent right but it does get better never found out what it was, did you feel suffocated? I’m going threw an awful flare at the moment so it’s come back maybe they might find out what is causing it this time I’m glad your feeling better xxx
Thanks Sammymoat, I feel your pain! It’s so hard when you don’t know what’s going on, or whether you are doing anything to exacerbate it. Yes, at times I did feel suffocated, but most of the time I would just run out of air after the mildest exertion. It would be wonderful if you could find a cause this time around. Let us know how you get on. All the best to you! 🌈
Hi. Breathlessness. Ive developed this too. Has been deliberating at times.
Mine started after my first covid jab (ive had both and the last booster).
This symptom has weakened me as a person. Even with Lupus i am strong and push through everything but since this started....... after my second jab the Breathlessness lasted upto a few of weeks before my booster. I felt better, had the booster and bang... there it was again but tenfold. And 4 days later i had full covid, tested at hospital level. Seriously ill and positive for 27 days!. Very unusyal. It isnt my lungs its effected, its my heart muscle /sack, weakened it apparently. I am pulling back up now but each time i recovers less. I will not be having any more covid boosters. I was all for it , recomended to everyone how important it was to have, to be protected, stay well ect but i can honestly say that since starting the vaccines my Lupus (which was always controlled) and my general health have deteriorated massively. Hope this doesnt upset anyone , but i think people should know what happens to us.
Yes Largather, I’ve also heard about bad vaccine/booster reactions. In fact, one of the working theories for my condition was that it could be a *very rare* vaccine reaction! Mine also affected the heart, but not the lungs or musculoskeletal system. I can understand you being wary of further boosters, I am too!
crazy that this happened to you as my lupus was controlled so well for the past 6 years had the odd mild flare up but had my first covid vaccine was I’ll for a month then recovered second covid vaccine bang full blown flare, I couldn’t breath either it went on for a year kept going to the docs but eventually I called my lupus nurse as I started getting to the point I couldn’t walk and I had blue lips! It was infect fluid on the lining of my lung, and waiting for a lung function test as I have scarring, they won’t say it was the vaccines but I’ve been poorly since been on steriod injections and put on mycophenolate I’m still not right but getting there, I can’t be sure it was the vaccines but it’s sad that we take these things to protect ourselves and end up making things worse, take care xx
It’s so tough, isn’t it? We never know whether these vaccines, designed to help us, are going to be more harmful in the end. But I suppose the same could be said for many medications and other treatments too. All the best with your lung function test, let us know how you get on. 🌻
Thanks SV, the return to work is going well—so far! Yes, I’m still badly missing my furbaby. Hoping to get another one (or two) again soon, the house is not the same without them!
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