Hand shakes

[Dave136]

Hi all

Not sure if it lupus related or my heart as was diagnosed with lupus few months ago but also have dilated aorta which still waiting to see cardio surgeons

In last couple of weeks my hands have been shaking noticed when at work and doing delicate work on circuit boards has happened about 5 times now

Just wondering if this is lupus related, not due to see specialist for few more weeks

Thanks

[sarahalice]

Hi Dave.I can suffer from restless leg syndrome, that I also got in my arms. I was put on 20mg of Amitriptyline which helped loads. Might be worth talking it over with yr GP as soon as you can.

X

[Dave136 in reply to sarahalice]

Thanks I’m due a appointment with specialist in next couple of weeks so will talk to them just wasn’t sure if is lupus related

[sarahalice in reply to Dave136]

Hi Dave. Seems to be, if you have lupus the docs will try to trace everything else back to it being lupus.

Best of luck with the appt, your you're feeling loads better soon.

[Willow1414 in reply to sarahalice]

Hi Sarahalice

I’m just reading your post .

I’ve just stated medication for RLS .

How long does it take to start working . I’m on day 3 of meds . Still no relief . More sleeper than ever . 😕.

I’m on riponerol , think that’s how it’s spelt 🙃.. lady at pharmacy says it’s used fir Parkinson’s disease . As some weird side effects listed , doctor said to stop and review meds , if I start to want to gamble or other obsessive out of caricature behaviour 😳…🦋❤️

[sarahalice in reply to Willow1414]

Hi Willow.That sounds horrible. I get into a panic everytime I read the side effects of all these meds!

RLS is the worse, its so exhausting. The amitriptyline I'm on is an all rounder. Its used for depression and used in kids to stop them wetting the bed, bless. It also helps relax the muscles which is how it helps with RLS.

I had a mix up getting my meds this month and I couldn't take my main med MMF for a few weeks. I instantly stopped sleeping due to my restless legs. So I think all my meds play apart to help to control it. It only took a couple of days after taking my MMF that it started to get better.

Hope you find some relief soon.

X

[Alida_Bennett Partner LUPUS UK]

Hi Dave 136

Welcome to the LUPUS UK HealthUnlocked Community. We offer a free information pack which you can download or request at:

healthunlocked.com/api/redi...

I have done a little research around the issue which you are experiencing, and you may find some useful information here:

nhs.uk/conditions/tremor-or...

I have also checked in The Lupus Encyclopedia and there appears to be many possible causes for the symptom you describe. I see you have an upcoming appointment with your specialist, but I would suggest that if you are concerned in the meantime, you might want to contact your GP.

You may find our publication relating to heart and lung involvement in lupus helpful, which you can find here: lupusuk.org.uk/wp-content/u....

In addition, I would suggest that, if you haven’t already, you may find some useful information on the British Heart Foundation website here:

bhf.org.uk/?gclid=6d5caf2da...

I hope your upcoming appointment goes well – do please keep us updated.

Kind regards

Alida

[Jmiller623]

I get the shakes but it’s related to adrenaline surges from dysautonomia. I also get a resting tremor at times which runs in my family. Seems like an essential tremor. Sometimes my voice will be shaky from it as well. There are a lot of things that cause shakes/tremors. Hard to say if it’s from lupus or not. I know my dysuatonomia is from lupus. Take a video when it happens and show it to your GP or cardiology at next appt.