How to prepare for Rheumatology Appointment - LUPUS UK

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How to prepare for Rheumatology Appointment

natmitch profile image
2 Replies

Hello, I'm new here. I have an appointment with rheumatology on Saturday, and would love some advice on how to prepare for it fully.

I've been referred because a recurrent miscarriage clinic picked up a positive ANA test- the repeat test was also positive (a weak positive.) I have struggled with joint pain for the past few years in my hips/ SI joint primarily, which was originally put down to my severe endometriosis. I had an MRI five years ago which picked up some issues with my SI joint, so I've been having steroid injections which have helped, but the pain has worsened over time and now includes my knees. I had an appointment with rheumatology at the time and the consultant was very dismissive, and I'm just really anxious that I'm going to be dismissed again.

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natmitch
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Foggyme profile image
Foggyme

Natmitch. Many apologies for doing it like this but I have no me left right noe so can’t make a more personal response to you. I am just keen fir you to get some input so… I’ve just left a long reply to the post at the following link, that might help you (towards the bottom):

healthunlocked.com/lupusuk/...

Dismissal - many of us have been there - be brave, be strong, but most of all - don’t give up.

Please post again to let us know how it goes, most especially if you get the ‘dismissal’ thing and would like further advice.

Very best of luck x

natmitch profile image
natmitch in reply toFoggyme

Thank you for directing me to the other post- very useful! x

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