Once again I’ve been out of commission for a while. I was working in the garden the latter part of July, and my right femur about 4 inches (10 centimeters) above my knee literally just crumbled. I have just in the last couple of weeks started to be able to walk again. I was in the hospital for 3 weeks. Had complications from the surgery. I have a metal rod and plate from my knee joint to my hip joint.
Anyone else have soft brittle bones?: Once again I... - LUPUS UK
Anyone else have soft brittle bones?
OMGOODNESS Tiras 😊🌿🌸🦋Sorry I lost touch with you as I’ve been very ill myself.
Soooo sorry about your brittle bone crisis and complications.
I’m happy to hear you’re starting to walk again.
I just said a special prayer for you and wife and send full recovery wishes and healing ❤️🩹 hugs 🤗 too.
Take care stay safe my friend.
EJ 🤗♥️🥰🙏🕊🌿🌸🦋🤝
Thank you, hope you get better also!❤️
Thank you so much. What does it feel like to have the metal rod in your leg??
Oh Tiras! So sorry to hear this! I’m glad you are on the mend. I know how much you love your garden!
I think it’s tough for men with regards to bone health as doctors tend to only be concerned about women. For example, I’ve had three Bone Density Scans (each 2 years apart) and I have taken Calcium supplements off and on while my husband (who is my age) nor his GP (who is also my GP) has not even thought about his bone health. In fact just a week ago I mentioned that at my husbands next annual physical he should ask for his doctor to order a Bone Density Scan.
Luckily, my bones are in pretty good health - a bit of osteopenia but no osteoporosis. I take a liquid Vitamin D supplement daily (without adequate Vit D we can’t absorb calcium) and try to eat/drink calcium rich foods. I do weight bearing exercises as well.
I suppose it could be lupus that’s affecting your bone health. What do the doctors say? I’d ask for a bone density scan as well as a treatment plan to improve your bone health.
Wishing you a speedy a full recovery!
A few years ago my wife was spontaneously fracturing bones. Most of the fractures were in her pelvic region. She had a failed laminectomy of her L4 and 5 because the bone was so friable that nothing else could be done. She had both shoulders replaced because the bone had disintegrated. We found out that she had hyperparathyroidism. After removing 2 of the 4 parathyroid glands and using D3 and Calcium treatment she has strengthened her bones, so that she has not had a fracture in two years.
You might want to have a look at D3 and PTH (parathyroid hormone) blood levels values to see if they are okay. The calcium values may look okay but if the D3 and PTH are out of whack the calcium values can look normal because the calcium is being leached from the bones to balance the high PTH emission.
Hi Tiras, thanks for posting—holy cow, what a devastating way for your leg to collapse on you! No wonder you have been out of commission!
I have bad bones too (though not as severe as yours). I have rheumatoid arthritis and have just been diagnosed with osteoporosis at the tender age of 40. I got my bone density tested after a minor fall resulted in me breaking my shoulder. So I can definitely relate to bones not doing what they should.
I also have terrible TMJ (jaw) joints. My TMJs never developed properly, so they grew in an abnormal shape, but the lupus has also attacked them and corroded them. I have no bone marrow left in my TMJs, so they are literally collapsing inside my face. I am gonna see a surgeon next year about getting both TMJs replaced.
I am now seeing an endocrinologist about the bones (and other stuff too) who is recommending various supplements. I hope you have a good specialist to care for your bones. All the best with your recovery—glad to hear you are starting to get up and about again!