Eyes

[Stellawillow]

Hi all not posted in a while. Bloods came back negative for autoimmune but still have many symptoms ongoing. My eyes are still bad woke up with a mass swelling above eye currently being treated for cellulitis but my gp didn’t seem concerned. I’ve had bad eyes for 5 months now luckily my optician referred me I see specialist Monday. I’m scared because I’m getting worse every day and my eyesight is getting very blurry now. Because my bloods came back ok I’m not being referred to a rheumatologist. I’m at my wits end but right now I’m scared because of the trauma my eyes are going through. Xx

[Barnclown]

V much feeling for you. When my Lupus is flaring, or I have an infection etc I also get flares of persistent periorbital oedema that look very like yours in this photo.

It is a dreadful feeling when you can barely see due to all this. I suffered with this for years before finally getting the help I need. It’s great you’re taking such really good photos: these will help your doctors a lot

It’s good your optician is proactive & referred you, cause your eye clinic really can help a lot: eg the combined therapy Sjogrens dry eye & severe cornea inflammation treatments my nhs eye clinic prescribed help a lot to reduce that fluid retention & swelling in the soft tissues surrounding my eyes.

Hope you’ll let us know how you get on ❤️🍀 Coco

[Stellawillow in reply to Barnclown]

Thanks for replying yes it is very frustrating as it must be for you. My eyes look different every day today they seem to be closing in on me and the skin around feels extremely tight and dry. I look really weird so I don’t take sunglasses off at all now. I really can’t wait fir my appointment Monday x

[Barnclown in reply to Stellawillow]

Thank goodness you’ve got this appt!👍