Lupus : Can anyone please help me with advice I’ve... - LUPUS UK

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Liz2468 profile image
16 Replies

Can anyone please help me with advice I’ve have a terrible itching all over my body even wakes me up scratching my head and all over my body does anyone know if this is anything to do with my lupus because it’s driving me crazy

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Liz2468 profile image
Liz2468
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16 Replies
svfarmer profile image
svfarmer

Hi yes I get random itching that drives me insane - I take piriton every 4 hours when I’m like this and it really does calm the itch down x

Liz2468 profile image
Liz2468 in reply to svfarmer

Thank you for your help and advice because like you it’s driving me crazy

svfarmer profile image
svfarmer in reply to Liz2468

Your very welcome x

Oshgosh profile image
Oshgosh

I used to have loads of random itching before. I was in immunosuppressants.This year. I was very itchy on the evenings,when I got undressed.

I recently bought a more expensive bath foam.

I don’t itch any more,so I now need to look for special offers !

Liz2468 profile image
Liz2468 in reply to Oshgosh

Hi thank you for getting back to me I appreciate your help could I please ask you something what is Immunosuppressants and did that help you with your itch

Oshgosh profile image
Oshgosh in reply to Liz2468

The immunosuppressants are to treat my auto immune conditions.The itching stopping was just a bonus.

I don’t know if it’s coincidental,my stopping itching,I don’t understand it.im just enjoying the no itching for now.

Lions-lake profile image
Lions-lake

Hello it's awful itching like that. The only thing that works for me is hydroxizine. I also use body wash etc designed for itchy skin. I finally deduced that gluten was the culprit. I hope it stops soon for you.

Liz2468 profile image
Liz2468 in reply to Lions-lake

Thank you for your help advice as I’m totally confused what could be causing this itch I’ve had bloods taken and everything was fine I really appreciate people getting back to me about it thanks

miccika1 profile image
miccika1

Here is a good link on itching to check out. webmd.com/skin-problems-and...

miccika1 profile image
miccika1

Also it could be vitamin b12 deficiency

joanneM200 profile image
joanneM200

Hi, I get incredibly itchy, to the point I’ve scratched myself raw.I’m on a prescription antihistamine ( prescribed by the hospital) Fexofenadine, 180mg twice a day, it works, and if I forget to take it for a couple of days the itching starts up again. Might be worth asking if you could try it.

Simplysusieb profile image
Simplysusieb

I take a daily prescription dose of allergy medicine. It is the only thing that has helped me from chronic hive and itchiness. I still get some hives when my lupus is aggravated but it is minor compared to before I started taking it.

CecilyParsley profile image
CecilyParsley

I get itching most places. I know the morphine I take for pain exacerbates it but my back and scalp are the worst. I take antihistamines wife daily but the under skin rash on my back still drives me crazy. I use thick emollient cream twice a day too. I hope you find something that works for you xx

Tonk profile image
Tonk

Antihistamine does help.My own experience is that my skin itches when the temperature drops by just a few degrees.

At night, I sometimes wake up with my arms out side of the covers, my arms then start to itch. When I put my arms back under the covers, the itching stops.

The funny thing is that I wear long sleeve shirts in the colder weather to prevent itching but long sleeve spf30 shirts in the sun to prevent rashes and burning.

Lupus is a crazy condition and we're always learning new things about it even after decades of having it.

Ratana21 profile image
Ratana21

Only thing that helps me when I itch is allergy medicine (antihistamine). I use to scratch til I bled especially my hands and feet.

Sashappy profile image
Sashappy

I found my scalp and arms itchy. My scalp is the worse. It comes and goes.

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