PIP Award Lupus SLE

[svfarmer]

Good morning folks I’ve been receiving PIP for the last 4 years when I had to give up my job because of my Lupus- every 2 years I’ve had the dreaded PIP forms and interview - I had the dreaded forms sent to me few weeks ago I’ve just had a letter from DWP saying theve looked at my award and can now give me the enhanced rate of PIP which is awarded until 2027 , I’m delighted as you can all imagine so people please don’t give up if applying for PIP also I watched a zoom meeting on Lupus Uk all about applying for PIP and got lots of little tips that I hadn’t thought of so really worth watching this so THANKS Lupus UK 👏😀💕

[Spanielmadlady]

Great news SV but omg will it fly by 👍🙌😊 xx

[suzannah16]

🥳🥳🎉👏👏👏

[honeybug]

🤗♥️🥰🙏🕊

[kjsfm]

Fantastic- I may need your advice when my renewal from comes through. Mine runs out April 2022. Well done!!!

Also where is the zoom on LUpus uk - just had a look and cannot see it.

Thanks

[Jamaica21 in reply to kjsfm]

Yes I am keen to watch it as well

[MEGS53]

I'm delighted for you. And well deserved (unfortunately, if you know what I mean!)!

😀😀😀

[CecilyParsley]

Wonderful news. I am so pleased for you. I know what a huge relief this is xxx

[Krazykat26]

Congrats sv 🤗🙌Can I ask u a question..how long has it taken u to get the letter? I completed my form before the 17th Dec deadline..on 20th Jan I had a phone review n was told I'd get enhanced rate..however I still haven't received the award letter!! It's been three months..I did get a motorbility leaflet couple of days ago. I'm just wondering if I should give them a nudge!! 😹🌈😽😽Xx

[svfarmer in reply to Krazykat26]

Yes I would give them a nudge, I got my letter really quickly- it was only about 4 weeks xx

[Krazykat26 in reply to svfarmer]

Ok thank u 🤗Happy shopping!! 🙌🤑🌈😽😽Xx

[Krazykat26 in reply to svfarmer]

I rang DWP yesterday n it seems I've been missed!! 😤😡They're onto it so hopefully I'll find out today what's happening. So glad I decided to give them that nudge..although kick up the backside would be my preferred method right now!! 😹🌈😽😽Xx

[svfarmer in reply to Krazykat26]

😂😂 how annoying- glad you gave them a nudge - hopefully your get an answer soon - have a great weekend ❤️

[daniel55 in reply to Krazykat26]

Hi KrazyKat I had an assessment december 2019 and didn't receive my letter until April the 8th 2020 so it might come soon take care xxx

[Horsewhisper]

That’s great news - what a relief for you! 😘🤗😘

[Muff20]

I haven't been able to work for 5 years and I haven't claimed anything. I have the diagnosis of UCTD as my blood results don't show anything. I just can't face trying to fight without a clear diagnosis I feel they just won't take me seriously about how ill I am. Sometimes I can't even walk. It's hard enough even getting Drs to understand when bits of paper with numbers on don't tell them I am ill😕

[svfarmer in reply to Muff20]

I’m so sorry to hear this - it still might be worth a try because there are people on here with same diagnosis as you and they get PIP x

[Muff20 in reply to svfarmer]

Thank you. I am so destroyed by 7 years of trying to prove to Drs I am ill. Even my current rhuematology consultant has turned on me as I am not being given further treatment. She has almost totally gone back on what she said at the beginning. The attitude now is you are lucky I am being given hydroxcholriquine as your blood tests shows nothing! At the beginning she said you can have a lupus tyoe condition with negative blood tests. I am so fed up of fighting to be heard and believed. I have no quality of life and am in constant pain and basically just have to get on with it!

[svfarmer in reply to Muff20]

How awful for you I’m really sorry - it must have such an impact on your life , I know there are many people on here without a proper diagnosis that are saying the same as you - from what other people have posted on here I’m sure you can change your rheumatologist consultant, if I were you I would ask your GP to refer you to another consultant as the one you see is clearly not listening to you properly- this group is very supportive friendly bunch, if ever your struggling please vent- sending big hugs 🤗 to you xx

[Muff20 in reply to svfarmer]

I am already on my 3rd rhuematology consultant and the last one I saw is very high up and is known to Lupus UK. I am really at my end of having any faith in Drs and any hope of getting well. My life stopped at 48 I now have no chance of getting back to work. I have been told even with modern medicine we can't fix you! Drs do not care that when you leave their office that you can't work, do your house work or look after yourself let alone your family. That's not their responsibility. I have been told I need to accept there is no treatment and no answers for me.

[svfarmer in reply to Muff20]

🤗🤗💕

[Pumpkin2009 in reply to Muff20]

Muff20, I don't have any words of wisdom, but my heart goes out to you. once again, I wish doctors didn't depend on tests and listened to you and played detective by what you are telling them. Don't give up.

Healing hugs.

[Jamaica21]

Please do provide the link or directions to find this video

[svfarmer in reply to Jamaica21]

I’m not that savvy when it comes to links but I’ve posted another picture with how you can access the zoom meeting- hope this helps x

[Jamaica21 in reply to svfarmer]

I am even worse where do I find your picture please?

[svfarmer in reply to Jamaica21]

😂😂😂 just scrow down peoples post and you will come to it - i posted it yesterday x

[svfarmer in reply to Jamaica21]

Hi if you go on you tube Lupus uk official website and press on videos then just scrow down to benefits PIP x

[Bellissimo]

Good news indeed. Thanks for sharing..Where did you see the detail on how to do the forms

[svfarmer in reply to Bellissimo]

If you go onto you tube and type in Lupus Uk official website and then press on videos just scroll down to find the meeting on Benefits PIP x

[Spotty-ewe]

Congratulations SV at being awarded the advanced rate of PIP until 2027.👏🏻👏🏻 Brilliant news! 👍🏻👍🏻 I have looked at the zoom meeting you mentioned and wish I’d seen it before I applied for PIP a couple of weeks ago. Lots of tips and inclusions we didn’t think of. Hubby filled out the form for me because I can’t face formal documents anymore and he did get the help of CAB by phone so fingers crossed. 🤞 At least knowing what to expect at an assessment and appeal is very helpful. 👍🏻 Thanks for the info SV and congrats once again on your success! 👏🏻🥳🥂

[svfarmer in reply to Spotty-ewe]

Thankyou Spotty ewe yes the advice from the zoom meeting was so good with tips - hope your PIP goes well for you - always so stressful ❤️

[Spotty-ewe in reply to svfarmer]

👍🏻👍🏻🤗😘xx

[Pumpkin2009]

I am so happy for you. What a wonderful relief to be able to breathe and not be worried every moment.

Healing hugs.

[svfarmer in reply to Pumpkin2009]

Thankyou xx

[April2018]

Great news! I haven’t applied for PIP. The process is so daunting.

[svfarmer in reply to April2018]

Hi yes it is a daunting process but found lots of good tips about filling in the forms from lupus uk maybe think about applying for PIP x

[April2018 in reply to svfarmer]

Thank you x

[daniel55]

I am pleased for you it gives you peace of mind I applied for my first pip in september 2019 and awarded it in April 2020 and received my first payment in May last year before that I had been on DLA I was awarded it until December 2023 and earlier this year I received a leter to say they have extended it to September 2024 because of covid delays apparently they stopped processing applications for a short time take care xxx look forward to the next update of your two little ones 🙂🙂

[svfarmer in reply to daniel55]

Ahh thankyou am so pleased for you too - it’s such a relief isn’t it - have a good weekend ❤️

[Forgot2mention]

Fantastic. Glad to hear someone get it and rightly so. My granddaughter was refused, so well done you.

[svfarmer in reply to Forgot2mention]

Oh I’m sorry that your granddaughter was refused - they make it so hard for people xx

[Forgot2mention in reply to svfarmer]

They said it was because she doesn’t need constant care which is true if she doesn’t have a flare, thankfully she is very well and back to her education at college

[svfarmer in reply to Forgot2mention]

Really pleased she is doing well x

[Forgot2mention]

Thank you.

[Hidden]

Thanks for the prompt. Watched the videos earlier today. Well worth it & thanks to Lupus UK & Chronic Creatives for doing them ❤️

[svfarmer in reply to Hidden]

🥰