Low platelets, ITP and SLE: I read somewhere that... - LUPUS UK

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Low platelets, ITP and SLE

Babsy2 profile image
7 Replies

I read somewhere that if you have a low platelet count, mine is 38/40 , not to have the Pheizer jab. Does anyone have any knowledge of this.

I am currently not on any medication. Thank you. Stay safe, stay warm.

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Babsy2
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PMRpro profile image
PMRpro

Something to speak about to the doctor at the vaccine centre. There was a case in the USA of a doctor who developed low platelets after his vaccine which they were unable to sort out. But I don't think it is necessarily to do with the vaccine.Has yours been investigated?

Babsy2 profile image
Babsy2 in reply to PMRpro

Thanks you for your reply. Might try my GP or consultant for an answer. I know they are not seeing patients yet, but might manage a phone call.I have had this ITP for about 30 years now. Had lots of investigations and treatments. However nothing improves my plateletcount. I have had platelet infusions before an operation and before Dental exctractions, which does stop any excess bleeding.

Babsy2 profile image
Babsy2 in reply to PMRpro

I have spoken to my haematologist, perfectly ok to have either AstraZenica or Pheizer jab. Thanks for your previous reply.

PMRpro profile image
PMRpro in reply to Babsy2

Thank YOU for telling me the result!

Jmiller623 profile image
Jmiller623

ITP is a diagnosis of exclusion and we have no clue what causes it still. With that being said, there has been one case of ITP after vaccination here in the states. However, it has been deduced that the vaccine unlikely caused or worsened the patients ITP since it literally can happen for no reason in some folks.

Here in the states, people with a history of GBS or even ITP are still getting the vaccine. I don’t think it should be a problem but make sure you discuss with your GP. Maybe they can get scheduled labs after you have the vaccine to keep track of your platelets should you need an infusion.

Babsy2 profile image
Babsy2 in reply to Jmiller623

Thank you for your reply. I am going to be in touch with my GP.

Jmiller623 profile image
Jmiller623

A really good overview of ITP and COVID for you. Answers all of your questions.

hematology.org/covid-19/cov...

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