Second times a charm?! : Firstly, we made it... - LUPUS UK

LUPUS UK

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Second times a charm?!

Birdie20 profile image
3 Replies

Firstly, we made it through 2020! That in itself is a pretty darn fabulous achievement

My post is not new news but hoping the replies will help me feel better about my continued push to get diagnosed

Using a second opinion service through an insurance policy I have to get my ducks in a row to present to my rheumatologist in what will only be described as a Oscar winning performance to show him I am not a raving loony

How many times do I have to read about symptoms and other peoples experiences and feel like ‘this is me!’ Before a professional will confirm that ‘this is me!’?!

Will 2021 be my year?

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Birdie20 profile image
Birdie20
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3 Replies
Spanielmadlady profile image
Spanielmadlady

Hi.my diagnosis took 5 years I was only listened to when I went stiff in 2018 after I came off the steroids.i later found out my antibodies were positive in 2016 but were acted upon 🤬 who knows i might if been spared some kidney damage ! Keep a symptoms diary and take pics if possible...be confident in how you feel dont let them think they can fob you off.. ask questions , question their reasoning.. I do .good luck xx

KayHimm profile image
KayHimm

Never think of yourself as a raving loony! Just because they can’t put a label on your symptoms yet, doesn’t mean you aren’t sick.

Best of luck

K

stiff19 profile image
stiff19

I feel you 🙏 I hope you (and I) find 2021 to be the year. You’re no looney, I understand though, it makes you feel like you’re going crazy at times . I’m not a loon either. Stay strong and best wishes x

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