Went for my follow up appointment today, had loads to get through as until 3 months ago I hadn’t heard of lupus, started on hydroxy and was getting the results of the 3 MRI’s I had last week (pelvis/back/brain).
I’d taken a health timeline right from childhood and pictures of my malar rash and Raynaud’s, so you could say I was pretty loaded and ready...
The doctor barely looked at any of it and even said I didn’t have enough markers at this stage?!
I argued the point by saying if you ACTUALLY read what I’ve just given you, I have at least 6 out of the 11 criteria markers.
I’m continuing on the hydroxy but honestly, I was so upset at his attitude to just poo poo it all that I was nearly in tears.
I ended up going back to the reception desk and asking them to put my spare copy of the health timeline in my file because I wouldn’t be surprised if he put it in the bin as soon as I left!
Part of me thinks, well you’re on the Meds now anyway and I know it can take ages to get a diagnosis and part of me is so angry and frustrated with the way he was, I feel like asking to transfer or pay for a private consultation!