Good Advice?: I’ve just received a letter from the... - LUPUS UK

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Good Advice?

Barbara17 profile image
13 Replies

I’ve just received a letter from the Chief Medical Officer for Scotland advising me it is still safe to go out and about. In the same letter he advises on the importance of vitamin D and says it is ‘safe for all’ to be out in the sun for up to fifteen minutes! Oh, no it’s not Dr Smith.

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Barbara17 profile image
Barbara17
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13 Replies
PMRpro profile image
PMRpro

You WOULD think ... But they don't ...

CecilyParsley profile image
CecilyParsley

Wow!! Broad generalisations missing the mark 😞

MEGS53 profile image
MEGS53

If they can't get it right.......................???

suzannah16 profile image
suzannah16

I don't know where you are in scotland but in my part we have had very little sun this year. even on the few days it's been warm there is no sun.

Barbara17 profile image
Barbara17 in reply to suzannah16

It’s been very sunny and warm here today in Midlothian. We’ve had quite a few sunny days even with the cold east wind.

Frosty1960 profile image
Frosty1960

I got same letter did have the same reaction i can break out going to corner shop and back. Photosensitivity just gets worse did show was low on vitamin D when i was tested up at ninewells, wished I could go out more in the sun but just a memory now.

Barbara17 profile image
Barbara17 in reply to Frosty1960

I’ve just hung out the washing wearing my big hoodie dressing gown!

Frosty1960 profile image
Frosty1960 in reply to Barbara17

I know what you mean i get some looks going to shops local long sleeves buttoned up to neck, bucket hat and covered in factor 50+ ,some carry on just to get morning paper. 😁

Wendy39 profile image
Wendy39

Us "rare" people are always forgotten about.

Me being me, I'd be tempted to write back and point out the error for lupus patients.

I wonder if this is just Scotland.

x

AgedCrone profile image
AgedCrone in reply to Wendy39

Me too....I’d find a clinical definition of Lupus & sun sensitivity....and send it to him....under the heading....“FYI for your future advisory letters”.

It seems nobody in charge knows anything these days!

stiff19 profile image
stiff19 in reply to AgedCrone

It’s not the not knowing it’s the not caring. Generalising has become the norm even with docs. As Wendy said I’d be inclined to reply, 🤷‍♀️ But if they hear do they listen🤷‍♀️🙏

🤗

AgedCrone profile image
AgedCrone in reply to stiff19

No ....most are busy avoiding getting involved or giving answers.

Barbara17 profile image
Barbara17

I did consider that, Wendy.

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