Some 'Nasty' input.

[AndrewT]

***Posted in error on the LUPUS UK Community. Please see AndrewT's explanation in the comments below***

Dear All,

I don't often write, on this 'Forum', however a person- who will remain nameless, call her 'B', has sent me a PM saying the she is leaving. Her reason is that someone(s) have written some comments that Greatly Upset her.

I won't 'go into' the detail here, she sent me a P(rivate) M(essage) for a reason, suffice, to say, she was Very upset.

I have, as far as I can, tried to re-assure her that these 'Things' are both rare, and NOT tolerated, by the vast majority. Can I ask ALL on here to echo my assurances. Perhaps if 'B' reads, on these pages, how sad we are, to see her go...

AndrewT

[CecilyParsley]

I can honestly say I have never experienced anyone being nasty on this forum. People can report anything that distresses them and I am certain the majority of lovely people here would not stand for it. My advice would be to ask her not to leave but to contact the admins . I hope it gets resolved 😞

[Ar29980 in reply to CecilyParsley]

Hi to B

I am so sorry you feel this way. Most of the comments here are helpful and posted with the best of intentions to help others. I have been diagnosed for 2 years now and even just reading the questions posted and the answers gives me a sense of belonging. People trying to support each other is very rare. Please don't let a few people spoil this precious resource for you.

We will miss you if you leave x

[Krawlins]

That’s a terrible shame, sometimes people will disagree with us in life and it’s ok to have different opinions but, it is certainly not ok to be nasty to someone, that in my opinion is just unnecessary, sometimes you just have to agree to disagree.

Hopefully ‘B’ agrees to staying, maybe the person who came across as nasty might apologise for being so as they are possibly feeling somewhat guilty, or they didn’t see it as nasty because they didn’t intend to be. It’s just like in any form of text it can sound nasty or not how you intended if you had said it.

I for one don’t have lupus but no one has ever been nasty to me. This forum came up via google when I asked a question regarding my symptoms and here I have stayed and I am grateful for the kind advice I have been given.

Hope B decides not to leave but it’s a personal decision, hopefully any nastiness was a complete one off and only came from one person.

[AndrewT]

Dear All,

I have to make an Apology, of my own, to All you GOOD People- My Comments Didn't Belong on here! I was mis- directed, the reasons are unimportant, but 'B' has Clearly Stated that she has NEVER had any such Problems on Here.

'B' has suggested my 'Removing' this Post, as it accuses the wrong People- something I might do, once 'Everyone' has read this Apology.

Sorry once again a, rather Guilty,

AndrewT

[CecilyParsley in reply to AndrewT]

Andrew your intentions were entirely well meaning so no apology is necessary. You were being a good person and a good friend just trying to help ❤️

[Hidden]

For me your post provides me with a welcome opportunity to remind everyone that not all followers of HU communities comment or post.

So whenever you post or comment, just be aware not to give away too much personal information on your location, doctor’s names, your own name or anything that might make you identifiable to someone with malicious intent.

We can hopefully trust that the community at large will report nastiness and good admins here will act.

But at the end of the day, if a follower here can identify you by name and location then they can potentially do you harm on other less well run HU communities and on other less responsible, more toxic social networks. Staying safe and shielding well means not over disclosing through images or personal information you wouldn’t give out to strangers.

[lupi123]

I,m so sorry to hear that,there really is no need to be unkind to people!