Anyone else had bad side effects with these tablets? Was first put on MMF late summer 2018 after the lupus came back with a bang, within a few days I'd noticed that toilet visits were becoming a lot more regular. I mentioned it to the consultant who didn't want to change things as we were hoping the medication was going to help the kidney function too. Fast forward to February this year and I was changed from MMF to Myforctic to help and hopefully reduce the toilet visits. It got a little better but nothing major so I mentioned it to the consultant on Tuesday there who said he would mention it to my old lupus consultant. Yesterday I got a call to tell me to stop it as long term it didn't help my kidneys nor did the Rituximab that was for helping the kidneys too. So today is my first day without any of these ghastly tablets so let's see how I go, I know it'll take a couple of days to wear off but please let their be some light at the end of the tunnel as sick fed up of constantly going to the toilet several times a day and having a gut that makes noise after noise
MMF and Myforctic : Anyone else had bad side... - LUPUS UK
MMF and Myforctic
I take Cellcept (MMF). The leaflet says to take it away from food - and I stick to this rigidly. Even though I have been taking for a year now (and not for the first time), if I take it close to food, either before or after, it has the effect you describe. As I usually have to get up at night to pee - I take one dose in the middle of the night, and the other late morning between breakfast and lunch. This seems to work for me. When a member of our open water swimming group has a birthday, or just brings cake to share - I have to refuse, or take some to eat later, because of the MMF. It's an ongoing joke among the group that I have a 'food pocket' on my swimming bag - but all teasing is worth it to avoid the inevitable effects of combining food with MMF.