Frustration of having to wait for surgery ☹️ - LUPUS UK

LUPUS UK

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Frustration of having to wait for surgery ☹️

Bronn profile image
12 Replies

Well I was feeling pretty good, I got all my card making equipment sorted and tidied. Sorted all my wool. Until Saturday 11/04 (Easter w/e) Then that was it... Another urine infection, awful pain in kidneys 😖 smelly urine like you'd never believe 🙄 hot and cold spells. Feeling like crap.

Well this is what I am frustratingly to put up with now as Operation that would've fixed this is postponed due to Covid.

I am drinking so much Cranberry juice 🥤 My skin is going to turn purple soon, 🙄

I tried phoning GP but got redirected to an app to book a call back. Just hope a doctor phones soon. 🤞

Any advice please 🙏

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Bronn profile image
Bronn
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12 Replies
happytulip profile image
happytulip

I suffer from re-occuring UTIs and am under the care of infections diseases/immunology and urology for it. I'm on prophylactic antibiotics and have rescue packs at home. I'm currently on week three of anti-biotics for an infection right now.

My urologist said that there is no point in drinking cranberry juice as you'd have to drink about 8 litres of the stuff and it contains sugar. But he did suggest taking cranberry capsules instead to acidify the urine. I challenged him on this because NICE guidelines say that cranberry isn't effective but I have to say that it has helped me and if I miss a dose or two I am prone to the infection firing up again.

I hope you get some treatment soon.

happytulip profile image
happytulip in reply to happytulip

But if you are waiting for surgery, I am guessing that you have some sort of plumbing problem? I might be that until you have your surgery then things won't settle?

Bronn profile image
Bronn in reply to happytulip

Hi happy tulip, thanks for getting back to me 😀 I challenge your urologist on drinking Cranberry juice. My urologist says to drink it. I find that if I stop drinking it Hey up I get an infection. I do drink a lot of it though, but that's mainly because I like it.

I am waiting for an operation 'rectocele repair.' It was last cancelled 02/04

Horsewhisper profile image
Horsewhisper

Hi Bronn, my sympathies for you, UTIs do make you feel so awful. Have you ever come across or tried “d-mannose” capsules before? They work brilliantly for me. Maybe check with you doc before trying them to make sure they are suitable for you - you can get them from Amazon, Holland and Barrett etc. Good luck and I hope you feel better soon xx

Bronn profile image
Bronn in reply to Horsewhisper

Thank you, I will look into d-mannose. I've spoken to the gp earlier and antibiotics on their way 😀

Stay safe and keep well 💐

Oshgosh profile image
Oshgosh in reply to Bronn

I’m glad you managed to speak to your GP.

I hope it settles down .

Stay safe

Bronn profile image
Bronn in reply to Oshgosh

Thank you stay safe and well

happytulip profile image
happytulip in reply to Horsewhisper

I'm going to give that d-mannose stuff a try. Lots of people have raved to me about it. Just got to get through all of my cranberry first!

Forgot2mention profile image
Forgot2mention

I feel your frustration. I have been on the waiting list to have gallbladder removed since october, i was told the wait was 12 weeks. Not heard anything, and now with coronavirus can’t see it being anytime this year. I sometimes suffer from urine infections and i swear by barley water, i understand some on here can’t have this, but if you can give it a go.

You could cut your sugar/sweetener intake.

Bacteria seem to like conditions when there is a high sugar intake.

Maybe decrease carbs as these break down in sugars in the body.

Just a thought.

Btw I was watching a clip of Green Wing today. One where they were in the operating theatre.

I hope whenever you get your operation you don't get doctors like the Green Wing cast.

If you never saw it you must seek it out. So funny.

misty14 profile image
misty14

It always happens bronn when it's Holidsy time and we can be ill!. It's Sod's law appearing!. I'm glad you got the GP call back and treatment is on its way!. It's specially tough waiting for an op that can change our lives!. I'm doing the same as in severe pain and covid is in the way of my relief and waiting seems never ending!. Do hope you feel better soon and TAKE CARE. It's good to share and not feel alone with these problems. Xx

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