To elf isolate or not: Hi guys I was wondering if... - LUPUS UK

LUPUS UK

32,009 members28,326 posts

To elf isolate or not

Mala23 profile image
8 Replies

Hi guys I was wondering if anybody can help me out.

I am social distancing as I have discoid lupus and also had breast cancer 10 years ago. As I work as a holistic therapist I decided to cut down on my contact with people for 2 weeks.

My issue is that I read today that some people with lupus ned to self isolate for upto 12 weeks.

Are many of you doing this and do you think it is something that we should all be doing?

Thanks

Written by
Mala23 profile image
Mala23
To view profiles and participate in discussions please or .
Read more about...
8 Replies

I’m giving it a go. Idk about 12 weeks. One day at a time?

I plan on trying at least two weeks and see where the world’s at then. Then add weeks as time passes. I just bought a pack of N95 masks so I can go out temporarily, but they won’t be here until the middle of April/beginning of May? But that, and latex gloves, may give me a little more comfort so I can at least go to the store and buy groceries.

My husband has to go to work, he’s a first responder. He’ll shop for now, but I hate relinquishing extra tasks unto him, he does so much.

🙏Be well.

Mala23 profile image
Mala23 in reply to

Thanks for replying. I guess that I am a bit concerned as I am self employed and fall into the group that do not qualify for any help right now.

I will stick to my plan of the 2 weeks than playing it by ear.

Thank you my dear, I wish you and yours well

in reply to Mala23

Thank you Mala, yes, giving up income is such a problem, of course, but risking catching something you are in a high risk over is a bigger one(?) I hope this gets figured out soon so people won’t need to worry any longer. I hope it get’s turned around soon so we can all get back to life.

Roarah profile image
Roarah

All my doctors and therapists are doing tele appointments now. I have weekly one on one therapy online indefinitely since last week. In america it is becoming healthy or unhealthy are being told to stay in place. I did have a real appointment with my cardiologist for a heart condition follow up and we can go to the market for essentials but otherwise we are told to stay home if we are not hospital workers.

My friends who work at the hospital who have lupus, present cancer and other risks are still working. Also in NYC retired doctors and nurses have been contacted to fill voids even though they are high risk. So I guess it is not out of question to work if at risk but the need has to over ride the risk.

PMRpro profile image
PMRpro

Lupus is one of the conditions that is on the list - and one top rheumy told me this morning she considers any patient on 5mg pred or more is at risk. You can't guarantee your clients are not CV +ve - we know that here in Italy at least half of infected people show no symptoms.

Mala23 profile image
Mala23

Thank you all so much for taking the time to reply to me.

You have each helped to put my mind at ease.

Take care of you and yours.

Namaste

Kevin53 profile image
Kevin53

Two weeks at a time! Best wishes Kevin

Rainbowe profile image
Rainbowe

I'm still going to work as I am in a key occupation I have dle too

Not what you're looking for?

You may also like...

Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….

Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis...

Lupus and Radiotherapy

Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25...

Depressing facial rashes/What do you do?

Today I feel very overwhelmed with the uglies of lupus on my face. I’ve begun a flare of my own...

Has anyone had neck gland scans to check if a dry mouth is Sjorgens?

I have an appt to go to the Dept of nuclear medicine later this month to have some kind of scan to...

Shingles Jab

I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However,...