Hi my SLE friends
Plz suggest me the most effective way of protecting myself from sun. Actually I belong to India, which, if you are aware has very hot and bright summers. So, pls share your tried and tested methods.
Thank you
Hi my SLE friends
Plz suggest me the most effective way of protecting myself from sun. Actually I belong to India, which, if you are aware has very hot and bright summers. So, pls share your tried and tested methods.
Thank you
Hi Putloo, I reccomend a big floppy hat, a good parasol with UV protection and factor 50+ sunscreen. I also use factor 50 sleeves for my arms, I order them from America.
Thank you for your response
I’ve used a big floppy hat with SPF 70 and sat under large umbrella and after 2 hours, still got sick. Drained, felt a bit nauseated. And any body part accidentally out of the shade turned very red and stayed that way for months. 🤷🏻♀️This happened to me twice last summer. (Southern California). Idk if they make an SPF stronger than 70?
OMG.. That would be tough.... All of us must mind that
Hi Putloo, as well as using hats and umbrellas, I have washed some of my clothing in a powder called Rit Sun Guard, which makes them uv protective - it only works on natural fibers, like cotton, not synthetic fabrics, like polyester. I think the wash may need to be in hot water. You can also buy sun protective clothing, but it is expensive. I take my walks in the very early morning or in the evening, so I can enjoy some outside time without worry, and I avoid being outside between 10 am and 4 pm, or thereabouts, though I am not always strict about that. I always use sunscreen with an ingredient called Mexoryl, which is very uv protective. If you visit a place that is sunnier (nearer the equator or higher altitude) be more careful -- I had a very bad sun reaction during a winter vacation when I went from a cold gray climate to a warm sunny one, and apparently that is not uncommon.
There. That is everything I know. Good luck. I am sorry you have to deal with this -- it can feel awkward and limiting, but once you get a routine in place, it is not so bad. And we are all here to support each other, which is wonderful. Take good care of yourself.
Paloma
Thanks windy9
Hi Putloo, I have extremely sun-sensitive skin and live in sunny, hot Texas, U.S. All of the recommendations here are great - time of day matters! I’ve found that layering types of sunscreen helps a lot. For example, I wear Coola sun block spray (the only organic one I can find - expensive but worth it, available on Amazon) spf 30 on my arms, neck, chest. I let it dry before putting on clothes, Then if going outside, I also wear a long sleeve, and use an spf 50 umbrella (also from Amazon). On my face, I wear moisturizer, then LaMov organic BB cream, with spf, then powder, then spf 30 Coola setting spray. I’ll also wear a hat. The layers of protection have worked well, even visiting Texas beaches. When in the sun for longer periods, I wear Aveeno positively mineral spf 50 and reapply every hour and a half. If you research spf, you’ll find that research says a higher spf is not necessarily better or offering extra protection. Make sure your sunscreen has both uva and uvb broad sprectrum.
You’re welcome! Good luck. 🙂
Hi Putloo ,
We've got an article on our website with lots of information and advice for coping with sun sensitivity - lupusuk.org.uk/coping-with-...