Frustrating : Hi am new to site, was diagnosed... - LUPUS UK

LUPUS UK

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Frustrating

holayaddios profile image
6 Replies

Hi am new to site, was diagnosed 5weeks ago. In flare up at mo. Just feeling very frustrated. Don’t know where this is all going to end. I have lupus,Sjogrens , osteoarthritis,rheumatoid,fibromyalgia,

And raynuards. Now worried about work

and life with this condition.

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holayaddios
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6 Replies

Hi Holayaddios; I am very sorry to hear you have all these chronic diseases. You’ve come to the right place. It’s all very confusing and concerning, but you will adjust.

I was just reading through a post that started a year or two ago by Jimbo. He gives some excellent advice if you can find it. It should be one of the first threads in here, as someone just added a comment a few minutes ago. But his words will comfort you and embolden you. If you have time, please read them. I would try to paraphrase them here for you, but I could not do it justice.

All my best Hola, and it is truly ‘hola’ without any adios. We welcome you, and you’re going to be just fine. Just remember not to give up (ever!) and you’ve got this. 🙏all my best.

holayaddios profile image
holayaddios in reply to

Thank you. Just feels nice that I now have people that can understand what I am going through. I will look for jimbo como está. Nice too meet you.

in reply to holayaddios

Muy bien. ¿Y tú?

It really is a great place to be. No one else truly understands, as much as they want to. And, we don’t necessarily tell them everything, nor all the time. We don’t want to worry loved ones or bore others. We end up keeping too much to ourselves, yet, it’s for the best. So it’s nice to come in here and have others who understand.

¡Que le via bien!

eekt profile image
eekt

Hello Hola, allow yourself time to let in all sink in, it's not easy. You've come to the best place for support and advice, and sometimes even joy...stay with us!

The post the lovely, helpful Brooksidecourt mentions might be this one - healthunlocked.com/lupusuk/... - a very fine read indeed

Where is this going to end? With hundreds of 'stranger-friends' here ready to help out :)

Wiling you better xxx

holayaddios profile image
holayaddios in reply to eekt

Thank you. Already finding this a great support.

in reply to eekt

Yes, that’s the one. 👏thank you

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