Frustrating : Hi am new to site, was diagnosed... - LUPUS UK

LUPUS UK

32,249 members28,608 posts

Frustrating

holayaddios profile image
6 Replies

Hi am new to site, was diagnosed 5weeks ago. In flare up at mo. Just feeling very frustrated. Don’t know where this is all going to end. I have lupus,Sjogrens , osteoarthritis,rheumatoid,fibromyalgia,

And raynuards. Now worried about work

and life with this condition.

Written by
holayaddios profile image
holayaddios
To view profiles and participate in discussions please or .
Read more about...
6 Replies

Hi Holayaddios; I am very sorry to hear you have all these chronic diseases. You’ve come to the right place. It’s all very confusing and concerning, but you will adjust.

I was just reading through a post that started a year or two ago by Jimbo. He gives some excellent advice if you can find it. It should be one of the first threads in here, as someone just added a comment a few minutes ago. But his words will comfort you and embolden you. If you have time, please read them. I would try to paraphrase them here for you, but I could not do it justice.

All my best Hola, and it is truly ‘hola’ without any adios. We welcome you, and you’re going to be just fine. Just remember not to give up (ever!) and you’ve got this. 🙏all my best.

holayaddios profile image
holayaddios in reply to

Thank you. Just feels nice that I now have people that can understand what I am going through. I will look for jimbo como está. Nice too meet you.

in reply toholayaddios

Muy bien. ¿Y tú?

It really is a great place to be. No one else truly understands, as much as they want to. And, we don’t necessarily tell them everything, nor all the time. We don’t want to worry loved ones or bore others. We end up keeping too much to ourselves, yet, it’s for the best. So it’s nice to come in here and have others who understand.

¡Que le via bien!

eekt profile image
eekt

Hello Hola, allow yourself time to let in all sink in, it's not easy. You've come to the best place for support and advice, and sometimes even joy...stay with us!

The post the lovely, helpful Brooksidecourt mentions might be this one - healthunlocked.com/lupusuk/... - a very fine read indeed

Where is this going to end? With hundreds of 'stranger-friends' here ready to help out :)

Wiling you better xxx

holayaddios profile image
holayaddios in reply toeekt

Thank you. Already finding this a great support.

in reply toeekt

Yes, that’s the one. 👏thank you

Not what you're looking for?

You may also like...

Frustrating

Hi all I’m getting very frustrated I had a positive lupus detected blood result and lots of...
Babyida profile image

Frustrating !

So for the past week or so my left elbow, wrist have been really aching which is not great when I...
Debbiemay profile image

Frustrating

Evening all hope everyone is well. Having a bit of a funk just now almost 2weeks since I phone to...
Kat- profile image

Another frustrating day!

Life for me lately has been full of symptoms and stress and as all of you already know those seem...
amy35 profile image

Aaaaaaarghhhh help so frustrating!

Hello everyone I just wanted to rant a little bit as I am getting so frustrated. After waiting...
natal1a profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.