Lupus and pregnancy

[Gubby_1]

Hi I’m been diagnosed with lupus almost 4yrs now. I’m getting to my 30’s now n I’m getting really worried because I want start having babies. I’m on mycophenate. Is it advisable for me to try having babies? I’m scared I’m getting late with babies

[baba]

You need to talk to your specialist.

mycophenate is not recommended if you are trying to get pregnant.

[Gubby_1 in reply to baba]

Thank you

[Crazy_Cat_Woman]

Hi Gubby - please speak to your rheumatologist/ care team before trying to get pregnant. It important that you are taking the right medication and that your disease is under control before you get pregnant.

I had my baby at 30 and didn’t know that I had lupus. I was diagnosed with AI thrombocytopenia at the time.

I was fine in the first two trimesters but had a difficult time in the third and was eventually induced. But after all the hardship I ended up with a very healthy, beautiful and bright baby.

I wish you all the best xx

[Gubby_1]

Thank you @ crazy_Cat_Woman

[PositivelyLupus]

You should definitely speak with your specialist before trying for a baby, I was referred to a pre-pregnancy clinic for mine by my rheumatologist. MMF is not recommended for pregnancy and you will have to stop that medication and it is advised to have at least a 6 month gap between stopping and getting pregnant. It is best to only try once your Lupus has been calm for at least 3 months also. I had a healthy baby delivered at 36 weeks so only just counted as premature, he is doing very well so it is possible My blog is positivelylupus.com if you'd like to have a read of my journey, I blogged through my pregnancy and after so it may help. xxx

[Gubby_1 in reply to PositivelyLupus]

Thank you very much

[Annap26 in reply to PositivelyLupus]

Hi I read your blog on pregancy. I've just found out I'm 7 weeks pregnant I have SLE it wasnt planned and has come as a total shock! Can i ask if you had any anti bodies during your pregnancy? Thanks x

[PositivelyLupus in reply to Annap26]

Hiya lovely, thank you for taking the time to read my blog. Congratulations on your pregnancy, I hope you are well. I have no idea, does everybody not have anti-bodies? I have all my clinic letters and blood results but I don't know how to tell sorry xx

[Paul_Howard Partner LUPUS UK]

Hi Gubby_1 ,

It is definitely worthwhile speaking to your consultant. It isn't safe to conceive when you are taking mycophenolate - it is recommended this treatment is stopped at least 6 months prior to conception. This means that your consultant will need to look at changing your medication, perhaps to something like azathioprine, which is safe in pregnancy.

You can read more about lupus and pregnancy in our booklet here - lupusuk.org.uk/wp-content/u... If you would like a physical copy posted to you, please just send me a private message or email [e-mail] with your name and address.

[Gubby_1 in reply to Paul_Howard]

Thank you