Received confirmation today: Hi, I had my hospital... - LUPUS UK

LUPUS UK

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Received confirmation today

goldengirl profile image
4 Replies

Hi, I had my hospital follow up today & received my lupus diagnosis. Trying to find out as much as I can. I shall have to make some big decisions as we retired to Spain & the lovely sun has made my condition worse. When it's hot I feel like I'm on fire. My husband is not going to be happy if we have to return to the UK. He loves the lifestyle & climate here. Feeling a bit overwhelmed !

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goldengirl profile image
goldengirl
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tremarel profile image
tremarel

Aww that’s such a pity. We go to Spain a lot of the time it does help my aching body but have to be careful in the sun as my skin is not too good now after years of steroids. What part of Spain do u go ?

goldengirl profile image
goldengirl in reply totremarel

We live here in Andalucia near to Granada. This summer the temperature reached the mid 40s during July & August. We've been here since May 2017.

Boudica1 profile image
Boudica1 in reply togoldengirl

Can you not spend the hottest time of the year in the UK?

We use to live in Lanzarote and that can be really hot and at night would feel like you were sleeping on a radiator at night instead of a bed.

But we had to move back because of the Calima's, very fine sand blowing over from the Sahara, it caused a lot of problems with my lungs.

If you really don't want to move back here have you thought about going up into the more mountainous areas? I know it's not the same as the coast but it is cooler and you can get some stunning views.

Good luck with everything and finding a solution to the problem.

X

goldengirl profile image
goldengirl in reply toBoudica1

Thanks, it's all very new. I have other autoimmune conditions so it's a blow to gain another one. We do live in the mountains, Sierra Nevada, which is very cold in the winter but still very hot in the summer. I had already said to family that we will spend July & August next year in the UK, probably in a caravan as we don't have a house there anymore. But I may have to return to the UK as I'm quite photosensitive & the light is hurting my eyes. The other option would be to move to Northern Spain where the weather is more like UK, quite rainy.

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