New to this ! : New to here ! I’m 26 had a fairly... - LUPUS UK

LUPUS UK

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New to this !

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New to here ! I’m 26 had a fairly healthy life until 4 years ago I got diagnosed with psoriatic arthritis and then couple of years ago got told I had lupas with rashes on my cheeks . 3 weeks ago my arm was swollen I left it for a week or so and the swelling didn’t go away and pain was still there turned out I had Dvt in the upper arm and pulmery embolism I work full time to support my partner and kids but I haven’t been able to work and after few test at hospital Iv also been told that my liver and heart has been damaged by lupas . The last couple of weeks has been abit of a nightmare for me mentally glad there is a page like this that can help me :)

4 Replies
Lupiknits profile image
Lupiknits

Well, I can’t help much directly, but I do sympathise very much with what’s been going on for you. As you say, it’s been a nightmare with one problem after another. I’m sending a cyber hug.

Oshgosh profile image
Oshgosh

I hope you can get some treatment to relieve your symptoms.

This forum will be very helpful for you

Jam! I’m so very sorry you have to deal with this, esp at such a young age and with small children. Hold on and be strong. That’s all I can say right now. Your strength and attitude can see you through, or destroy you if you give in. Like the saying goes ‘one day at a time’, but you can do this!💪

Lizziequink profile image
Lizziequink

You're not having much luck at all Hidden. Life can be so unfair at times (and believe me, that's the polite version of what I really want to say to you). Stay strong and know that the people on this site will be there every step of the way for you, perhaps not physically but certainly in spirit x

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