Prednisone 40 mg: On 40 mg , feelin the effects... - LUPUS UK

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Prednisone 40 mg

Princerogers777 profile image
23 Replies

On 40 mg , feelin the effects, tryin so hard not to consume xtra salt or eat junk food so hard, feel hyper, jittery the usual . Any advice on how to control my eating or ways to relax on this , i may be on it for 3 moths for my lung disease brought on by lupus . I dont wanna get heavy ill b depressed :-(

Thank........PredDread in Cali

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Princerogers777
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23 Replies
loopy4me profile image
loopy4me

When I was on high doses of prednisone I drank lots of water and go for long walks to kill hunger and the jitters

Princerogers777 profile image
Princerogers777 in reply to loopy4me

Thank u good idea, today is jittery bad..

Whether you are aware of it or not some foods are very addictive

The foods you eat most regularly determine what's contained in your gut bacteria. Simply because the gut bacteria is there to help digest your food and won't thrive unless you feed it what it wants. So if you have been eating stuff that serves bad bacteria you are going to get nasty reactions from the overgrowth of bad bacteria that's being starved. Until you begin to get things under control again.

Sugar and sweet things are a major culprit here but processed food - anything in a packet or box or tin or that doesn't look immediately like a raw form of food - is likely not going to do you any favours and also possibly has the addition of flavouring enhancers which are addictive to get you to buy again.

The prednisolone will dampen your symptoms but will not fix the problems without you taking extra steps.

And it's incredibly likely that at 40mg you will gain weight quickly especially if you have a high intake of carbs

.

Princerogers777 profile image
Princerogers777 in reply to overnighthearingloss

Absolutely why im eating healthy n tryin to not add salt, my gut has no problems what i eat right now, jus trying to avoid the big bloat

Oshgosh profile image
Oshgosh

Hi,are you on a reducing dose of Predisolone

Princerogers777 profile image
Princerogers777 in reply to Oshgosh

No 40 mg maybe for 3 months str8

PMRpro profile image
PMRpro

If you cut the carbs in your diet it usually helps relieve the hunger pangs as well as moderating weight problems.

Pred changes the way your body processes carbs as well as triggering the liver to release random spikes of glucose into the blood - which triggers insulin release which tends to be too much as there isn't a meal to back up that spike. The BS level then overshoots and falls too far, causing the hunger for carbs to bring the BS level back up - and a real rollercoaster effect gets going.

The first week or so is hardest but once you get into it you do notice the cravings improving. If you are interested there are loads of posts over on the PMRGCAuk forum because low card is the way we push as everyone is on long term pred (years, not months) so it is a major problem for us. It is easy to adjust to daily living, even eating out - steak no chips and salad is on every pub menu! Low carb means you don't have to stress about finding low fat things - usually full of sugar so really a no-no! Cheese, eggs, meat and fish are all no/low carb and make ideal light meals and snacks.

Karm profile image
Karm

I have just myself been out on 40mg pred. In the last month and a half. I have noticed mainly since the end of last week to yesterday that it has opened my appetite up as I had lost 3 pounds in the last few months as when the pred was on a low dose my other meds were surpressing my appetite. I have been eating sometimes one main meal a day, but I ate at least 3 times Saturday, plus 4 packs of crisps! Which I haven't eaten that much in months and months. Lol.

I would love to hear also what can help, as I just go straight to eating without even thinking about it, and alot! X

Karm profile image
Karm in reply to Karm

They are losing my dose gradually (after a very high CK level blood test ) so I'm hoping as the dose does go down that may help.

Princerogers777 profile image
Princerogers777 in reply to Karm

I been going to raw carrots the hard crunch n sweetness helps my mouth stay busy, stuck up on veg n fruits. Drink tea, oatmeal, cream of wheat, water, i ate good yesterday n feel less puffy 2day :-)

Karm profile image
Karm in reply to Princerogers777

Will definitely try some more fruits. Just ate and my stomach mid absolutely killing me. Lower stomach cramp, especially if I cough! Lol. I may try yoghurts again as that usually fills me up quite well.

Princerogers777 profile image
Princerogers777 in reply to Karm

Id luv to try yogurt but lactose gives me gas, was having stomach issues b4 all this.

Karm profile image
Karm in reply to Princerogers777

Well, I have just found out the ONLY thing that I can eat without it reacting to my stomach is noodles. Lol. Every single thing I have eaten from last week made me bloated, gassy, made my indigestion worse. Tried noodles last night after taking my indigestion meds and it seemed to work better than anything else. So it seems like I am on a diet of noodles for the time being. 🥴

Oshgosh profile image
Oshgosh

Hi,was on a high dose for a month,feel for you having todo 3 months.

But,it’s probably better than being so ill.

apart from the obvious,- take it as early as early in the day as possible. I used to get up at 6 and take the pred with a brew,then back t bed.try and eat healthy,exercise etc.

I kept a fleece blanketontesettee for when I couldn’t sleep,ifI did get up I kept off theiPad..

I used to watch boring television,you didn’t say whether you are working or not.thinkingof you

Princerogers777 profile image
Princerogers777 in reply to Oshgosh

I dont work no , disability. I would excersize more but my lungs get too winded so cant do much

Thank u doll

Oshgosh profile image
Oshgosh in reply to Princerogers777

Wasn’t being nosey asking if you worked.

It’s just that if you can’t sleep at night,you can perhaps have a nap inthe day.

When I was on high dose I found it hard,but usually made a time to lie down inte day.

I always have a boring book available.

With an luckit bores me to sleep..look after yourself

Princerogers777 profile image
Princerogers777 in reply to Oshgosh

Yea my hubby works nights so i go do any errands in morning & get dinner in afternoon & wen he gets home. Find it really hard to get naps in day, my most jittery time . I will & thank u hun

Jmiller623 profile image
Jmiller623

Hi Prince. I’d chew gum when I got the urge to eat in between meals. Popcorn was a good snack too. I found rowing or a recumbent bike to give me a decent exercise for my body without winding me. Maybe try one of those under the table, portable bikes. I know people who’d use these at work under their desks.

I was on steroids for about 6 months. I gained 25 lbs and am still trying to lose it. Steroids also made me very short of breath. I really feel for you. I hope they work to resolve your lung issues so you regain some semblance of quality of life. ❤️ Hang in there!

Princerogers777 profile image
Princerogers777 in reply to Jmiller623

Thank u , its unresolvable unfortunately they say it just deteriorates but with kuck we can control the lu pool us itself which hopefully can slow progression, ill try the gum thank u so much

Jmiller623 profile image
Jmiller623 in reply to Princerogers777

I’m so sorry. Understood. Once damaged, lungs can not heal themselves. I just hope things get a little easier. Sending hugs your way. ❤️

Princerogers777 profile image
Princerogers777 in reply to Jmiller623

Thank you

ange726 profile image
ange726

Morning

I was told by my lupus Dr to cut out all refined sugar whilst I was on steroids. After getting over the shock I did it, felt great and no weight gain. I'm a chocoholic so just ate Raw chocolate. It was a good education.

Good luck. I hope you make a quick recovery. X

Princerogers777 profile image
Princerogers777 in reply to ange726

Thanks bunches

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