Don’t ever give up hope of getting answers to why your so ill, it just needs to be dealt with by the right person.

Finally saw a Dr who listened to me and put me in the right direction and I was offered an Referal with an immunologist after much I’ll health and many symptoms. Why wasn’t it picked up on sooner and why does it take so long, no wonder people give up all hope of ever being believed and treated. Was very unwell and still am but it took more than hundreds of GP visits, more symptoms and more severity to finally get somewhere. Maybe me having a mild to severe allergic reaction which is now affecting my breathing to make them finally see what may happen if they don’t act and act now. My symptoms have been more numerous, relentless and more determined to make me ill. it’s been like fighting off a Arnold Schwarzenegger T100 from the terminator films with just myself to deal with it and fight it off. Only this site and the lovely people on it have kept me sane I remember twitchy toes telling me to never give up just find other drs or specialists that has always stuck with me so like Captain Kirk from Star Trek going boldly out into unknown worlds I have done exactly that. I have kept many diaries ranging from the Adrian mole diaries type diaries with all my thoughts and feelings Like a teen not knowing which emotion I will swing to then onto the Bridget Jones diaries where I have a plan and it’s all going to be ok at the end. Mmmm. 😂. Well after much research at first only hearing my voice but then the helpful voices of those on this site like Joan of ark. I am going to war with my symptoms and the army of enemies be they in many shapes and forms well just in the shapes of strange inexplicable illness whilst fighting off the disbelief from drs and specialists but finally getting to win a battle but clearly not the war. That’s saved for later on. I now liken my journey to film characters and at the moment I am a mixture of Jason from Jason and the Argonauts sent to find the elusive Golden Fleece or should I say finally finding a magical cure to make myself and others well and hoping one day to win through whilst jumping from my many tasks like Hercules finding the impossible sometimes possible. So today’s a good day and I can hope and dream that the next specialist I find will be a good one. Have a great day everyone and as the commander from galaxy quest says and never give up never surrender. 😀😀

[Lupiknits]

A good day indeed! I love the description of your brave journey 👍🤣

[EOLHPC]

😍 i’m with Lupiknits 👩🏼‍🚀🚀✨✊👍✌️🤞

🍀❤️🍀❤️ Coco

[Hidden]

Blushing at being referenced as being like Captain Kirk☺️😊. So chuffed that you hung in there and have found your champion doctor. May the immunologist be equally champion!🤞🏻🤗👏🏻

[Hidden in reply to Hidden]

Thank you I find your posts very in-depth and informative and I remember I posted something when I was really down and it stuck about how to get rid of what’s not helping , recharge the batteries and back to it. Words to that effect. Thank you as it really helped me. Have a great evening and just to let you know it was a trainee who had just started at the drs surgery who was kind enough to give me 30 minutes which is mostly unheard of that wanted to help. Maybe I just need to see a trainee each and every time. 😀😂😀

[Hidden in reply to Hidden]

Trainees can be great as they usually don’t have compassion fatigue yet and can be more keen to learn from us. 🤗Xxxx

[Hidden in reply to Hidden]

Your just so right as the trainee listened and took me seriously. I think a lot of the time I have been to my drs they just thought it was stress or I was over reacting. It’s taken so long to get so far. It’s like being Rockie balboa. I just keep thinking get up and fight and would would Sylvester Stallone do. 😂. As for the drs, the specialists and the healthcare professionals that all do us a disservice I look to Churchill who said we will fight them on the beaches, on the landing grounds and in the streets etc. It’s like guerilla warfare we have to dig in, stand tall and stand up for ourselves even when it’s been beaten out of us and we don’t have the strength to go on. I really hope that you, I and everyone on this site finally get the help we should have got from the start. Take care. J😀

[MoyaP]

Fab!

A person who has not experienced your exhausting battle could never fully appreciate what you/we have endured.

I can feel your strength and determination (and also feel that a damn good sense of humour has also helped you through).

Battling against the system, when you are already at your lowest point is frustrating and terrifying. I too fought tooth and nail to finally see a specialist who took the time to listen to me and diagnose my condition. I questioned my own mental health and the support of my loved ones but now, I too can hold my head high and do everything I can (with a bit of help) to live my life the best way I can.

Thank you for making me smile (mind you, it won’t last long as I’m on my way to work 😂) xx

[Hidden in reply to MoyaP]

Thank you Moya I totally agree on everything you said and yes my sense of humour has always helped me. That and my loving son and husband who believed me, guided me and kept me sane when I almost had a mental breakdown with the stress of not being believed and am just so glad you and I have got more help. Wishing you a great weekend. Take care. J😀

[Lizziequink]

With you every step of the way Jeromicus. Keep strong x

[Hidden in reply to Lizziequink]

Thank you Lizzie and I hope you too are well. Have a great weekend. Take care. J😀

[Lizziequink in reply to Hidden]

You too Jeromicus x

[CecilyParsley]

What a positive post full of humour and hope. I needed to read something like this today. Thank you and the very best of luck with your new specialist ❤️

[Hidden in reply to CecilyParsley]

Thank you so much for your reply and words of encouragement. Thank heavens for people like you on this site as it’s the only thing that’s kept me sane when I have doubted myself and my sanity. Have a great weekend and I hope your ok and keeping well. Take care. J😀.