Hospital change

[Jill41]

Well yesterday I cancelled all appointments with my hospital the stress they are causing have caused is pathetic, I have now requested to be referred to another Trust enough is enough I'm also now looking to change my gp passed round and round in circles for years n getting no where sick to death of it all

[Lisalou19]

😣. I’ve honestly been to every department going !!!!

It’s a frustrating road for sure.

I hope changing course will help you x

[Jill41 in reply to Lisalou19]

Had 24 years of being ignored and fobbed off and sent round and round in circles the GPS are useless and still won't acknowledge I've been diagnosed we lupus ans other illnesses and if one more of them send me to pain clinic I will not be held responsible for my actions 2 times tryed didn't help and it semms my Dr's are not real Dr's lol

[Hidden]

Fighting the system endlessly takes a huge amount of spoons most of us lack. I’ve been where you are and I understand why you are choosing to walk away and take your chances with different GPs in another hospital. Best of luck 🤞🏽

[Jill41]

Alexa the NHS where I am is garbish unless u old they not interested just because I'm using hospital elsewhere does not mean I'm depriving myself of NHS, I was NHS staff the treatment I received is disgusting and as for going to complain threw pals come on they obviously back the NHS up, when you are treat the way I was you would move also

[JRyder]

My journey with SFN has been similar to tours and many others here.

The idea of taking an advocate with you sounds good. It can be very hard to stand up to all the idiocy you face alone.

I am fortunate in having a partner who now comes to every appointment especially the GPS.

My latest thing is trying to get lidocaine infusions, usual rubbish sent in circles - available some NHS hospitals etc. Southmead hospital Bristol won't even discuss if they are on offer with the GP

Infusions are available in Swindon an hour up the motorway. GP reluctant to to refer. Hero partner began a forensic interrogation of GP making it abundantly clear that we I had a right under Choose and Book to be treated in a hospital of my choice.

GP finally said that it might be stopped at a higher level than her. Again partner insisted on knowing who and then went on to make it clear that we would take legal action against the trust for negligence etc. We have copies of all letters and documents.

Guess what GP has referred me to Swindon! Disgraceful that we have to go to these lengths to get access to Pain relief.

Do find someone else to do some of the heavy lifting if you can. Pain wears you out.

Good luck

[Kelbol1]

Which departments are you being referred to? The rheumatology department I have been referred to have been fantastic since diagnosed SLE 4years ago- maybe the Trust you are in doesn’t have a good rheumatology department? I have spoken to other patients in the waiting room who travel to attend the freeman as their hospital does not have a specialised department x