London Lupus Information Day - 5th October 2019

[Paul_Howard]

Hi everyone,

On Saturday 5th October we will be hosting a free Lupus Information Day at Hilton London Tower Bridge, 5 More London Place, Tooley Street, London, SE1 2BY.

Registration for the information day starts from 1pm, with the event itself starting at 1.30pm. We will have a number of expert speakers including;

Dr Arvind Kaul (Consultant Rheumatologist)

Dr Thomas McDonnell (Lupus Researcher)

More Speakers TBA

The presentations will be followed by a question and answer session.

You can order your free ticket(s) online at lupusuk.org.uk/london-info-...

I look forward to seeing some of you there.

[Oshgosh]

What a shame it’s in London,I live in the north,could manage Manchester at a push,but bought of going to London makes me feel like crying!

[Paul_Howard Partner LUPUS UK in reply to Oshgosh]

Hi Oshgosh ,

In May 2020 we will be having one of these events in Hyde, Manchester. Hopefully this will be more accessible for you? We try to move around the country to give as many people a chance to attend as possible.

[Oshgosh in reply to Oshgosh]

Thanks for fast reply.can go bu car,which means I can avoid the dreaded public transport.hope you have a good holiday

[thestorm]

Would there be a video airing of this event for those who cannot be there, or are like some, from far away? The information presented would be of interest to many of us here. Wish I could jone in. Thank you, peace, blessings thestorm

[Horsewhisper in reply to thestorm]

That’s a great idea - to capture the day on video - or could we Skype in real time or something similar?

[Paul_Howard Partner LUPUS UK in reply to thestorm]

Hi thestorm ,

Yes, we will video the presentations on the day and they will be made available on the LUPUS UK website and YouTube channel a few weeks after the event. We will share details of the video uploads when they are available in here.

[Lisalou19]

Although I don’t have a diagnosis of Lupus at this time I would be more than happy to attend and help out or film it for those who are too far to attend.

Xx

[thestorm in reply to Lisalou19]

Lisalou, cheers to you for thinking so kindly of others!!!! If you are in the right place at the time, could you do that for many of us??? That would be fantastic. You are such a inspiration of helping your fellow man, or women. My heart is smiling from your simple act of kindness that can be spread to all!!! Please let us know if this could truly happen. Cyber hugs to you my friend. Thank you, sending peace, blessings, thestorm💖💖

[Lisalou19 in reply to thestorm]

Oh my , I’m physically crying at your reply.

I would absolutely do this for you all if I am allowed 😊. I am approximately 13 miles from London, even on my bad days I make the journey for my appointments and I would do the same for you all.

For us that have truly suffered we know all to well how hard living with these illnesses can be.

If we can help just one person on our journey then that’s a blessing .

Thank you for your kind reply

Xx

[thestorm in reply to Lisalou19]

Your truly carrying the banner for us all here! Tears of joy in helping others, you are so dear.💖As this little one once said,"think of your fellow man give them a helping hand, put a little love in your heart💖", and you did!!!! Lets see if we can get approval if you are willing, but please do not feel pressured to do this, the thought alone is a warming gesture. Also, maybe how many of us here in the hub would want to view it? Just thinking of you, and the undertaking of it all. What do you think dear Lisalou, let me know. kindness is contagious. peace, thestorm

[Lisalou19 in reply to thestorm]

If I can help just one person be apart of something that their illness denies them from travelling too, then I 100% will be there 😊

Of course if I’m allowed. Xx

[thestorm in reply to Lisalou19]

Bless you Lisalou, and I apologize for not getting back to you sooner, life just got in the way and as did my symptoms. If there is anything I can do to help you and on this journey event, please let me know. You are so loved always, sincerely I do mean that. Thank you for helping many of us over the barerors here. 😉👍😊 Great peace and blessings, and hugs, thestorm

[Paul_Howard Partner LUPUS UK in reply to Lisalou19]

Hi Lisalou19 ,

It is very kind of you to offer to do this. We do actually record all the talks at these events and upload the videos to our website and YouTube channel, so those who are unable to attend will still be able to see them. If you are coming along though, it will be lovely to meet you there.

[Amakura]

Possibly a very silly question but I've registered but did not receive an acknowledgement email. Am I meant to have received one or have the computer gremlins been on the war path again?

Just asking beforehand as I don't want to duplicate if I re-register.

[juneybells in reply to Amakura]

Hi I didn't receive a reply either not sure what to do xx

[patient165 in reply to juneybells]

Same with me

[Paul_Howard Partner LUPUS UK in reply to patient165]

Hi patient165 ,

Have you received an email now? I'm just back from holiday and catching up but you should have heard something from my colleague John.

[patient165 in reply to Paul_Howard]

Thanks for coming back to me. No nothing yet!

[Paul_Howard Partner LUPUS UK in reply to patient165]

Hi patient165 . I spoke to John and he said that everyone who we had received a completed request from has been emailed. Could you check your junk email folder to ensure that his email isn't in there? If you want to send me a private message or email me at [e-mail] with your name then I can check whether we received your request for tickets.

[Paul_Howard Partner LUPUS UK in reply to juneybells]

Hi juneybells ,

Have you received an email now? I'm just back from holiday and catching up but you should have heard something from my colleague John.

[juneybells in reply to Paul_Howard]

No haven't received anything

[Paul_Howard Partner LUPUS UK in reply to juneybells]

Hi juneybells . I spoke to John and he said that everyone who we had received a completed request from has been emailed. Could you check your junk email folder to ensure that his email isn't in there? If you want to send me a private message or email me at [e-mail] with your name then I can check whether we received your request for tickets.

[Paul_Howard Partner LUPUS UK in reply to Amakura]

Hi Amakura ,

Have you received an email now? I'm just back from holiday and catching up but you should have heard something from my colleague John.

[Paul_Howard Partner LUPUS UK in reply to Amakura]

Hi Amakura . I spoke to John and he said that everyone who we had received a completed request from has been emailed. Could you check your junk email folder to ensure that his email isn't in there? If you want to send me a private message or email me at [e-mail] with your name then I can check whether we received your request for tickets.

[Amakura in reply to Paul_Howard]

Thank you, Paul. I've just checked and I've received the email.

Apologies for the late response.

[Kevin53]

All our information days are on video, you can catch up on previous ones on our website. Best wishes Kevin Chair Lupus UK

[patient165]

When will tickets be sent out?

[Paul_Howard Partner LUPUS UK in reply to patient165]

Hi patient165

Have you received an email now? I'm just back from holiday and catching up but you should have heard something from my colleague John.

[Littlegreenie]

I tried to register a few weeks ago but there are no tickets left. Any chance That more tickets will be made available?

[Paul_Howard Partner LUPUS UK in reply to Littlegreenie]

Hi Littlegreenie ,

I'm just back from holiday and looking into this. At the moment it appears all of the available tickets have been allocated but I need to speak to one of my colleagues tomorrow when they are in the office.

[Hidden]

Thank you all who are working towards this information day . It helps to have the support and opportunity to hear specialists in the often confusing field of connective tissue diseases , and all too few local centres of excellence.

[Hidden]

Are there any tickets left ? Sept 1 , 2019.

[Paul_Howard Partner LUPUS UK in reply to Hidden]

Dear Hidden ,

I am just back from holiday and investigating this. It appears all of the available tickets have been allocated, but I need to speak to one of my colleagues when they are in the office tomorrow.