So after being told I had lupus, telling my employer and getting sacked over it, a 2nd rheumatologist said it was undifferentiated connective tissue disease. Having read up on it, it's no life threatening in the way lupus is. I've steadily declined in the months since my initial diagnosis, had one infection after another too. It's with the additional problems my diagnosis was downgraded which makes little sense to me. Ana is high, anti dsdna positive, on top of positive tests for APS. I have most of the symptoms of lupus except the malar rash. I was prescribed hydroxychloroquine which has done nothing for me except upset my stomach so I don't see the point. I persevered because I had hoped it would improve quality of life and I was aware it could prevent the disease damaging my organs etc. If it's undifferentiated connective tissue disease then there is no risk to my organs. After being unable to enjoy the summer holidays with my kids, spent most of today in bed, being in agony no matter what pain relief I try I've decided to quit the hydroxychloroquine. What's the point in risking my eyesight too for a drug that is useless when there is no risk of getting more involvement than I have?
I officially give up!