Having a nightmare.

[Wrexlu]

Have only been on methotextrate a month and had to stop tak8ng it as got four serious infections and nearly ended up in hospital.

I have informed my Lupus nurse but still very unwell as now the 8nfections have exacerbated my Lupus symptoms and I feel dreadful. I am supposed to be going tonIreland a week today and am so worried as I feel so weak and achey.

On the plus side it is a family holiday so they will understand if I need to rest.

My worry is do I start back on the methotrexate if it has made me feel so bad? Nurse said to delay tak8ng it as I am doing a phlebotomy course on the 13th and 14th May and want to be well enough for that.

Sorry for thevmoan just thoroughly fed up with it all.

[Lisalou19]

Morning, I would try and discuss this with your gp if you can.

Infections when your taking this type of medication needs to be monitored.

X

[Wrexlu in reply to Lisalou19]

Have already discussed it with my GP. Xx

[Lisalou19 in reply to Wrexlu]

Just keep an eye on yourself. If you develop a sore throat then get yourself checked again.

Unfortunately some people are prone to infections , but it’s the ones that don’t get better that can be a concern.

X

[PMRpro]

Normally patients are told to stop the weekly mtx dose when they have infections and while on antibiotics - and if you have had 4 in a month that should trigger a review of whether you are to use it at all.

If it were me I'd be saying a clear NO!

[Wrexlu in reply to PMRpro]

That is what I am going to tell my rheumatologist the next time I see her. Xx