Just posting to show a member what my skin does w... - LUPUS UK

LUPUS UK
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Just posting to show a member what my skin does when in contact with water!!! Not even hot water as that seems to dry my skin out

Boudica1 this is what my skin does mainly on legs, feet chest and hands when in contact with water!!!

As previously said never mentioned it to specialist as I think they will think I’m a raving lunatic.

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you're not crazy, I knew someone years ago who didn't have lupus or anything but she was "allergic" to water. I think it turned out to be one of the things they add to water but I don't know what. Your doctor should be able to find out.

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I’ve had complete allergy test against everything at Guys hospital, and I mean everything. Nothing ever showed up so I tell myself it’s normal. It only appears on the areas where I get my normal skin complaints. Never on the back of my legs, stomach or back! It’s such a weird one. Makes my skin very dry

X

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could it be the dye in clothing? I get eczema on the backs of my knees if I wear trousers with green dye, the trousers don't even have to look green. I don't get it anywhere else.

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I’m not convinced it would be dye. It feels like a reaction to heat, I also react with cold but not rashes , extreme pain!!! I just think I’m a lost cause and a if anyone is going to get weird symptoms it will be me 😬. But granted it could be much worse x

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Do not hesitate to mention this symptom to your doctors. There are many things that could be going on. It took a lot of tests to figure out what was happening with me. Happy to share the details if you want to message me. Your poor leg looks miserable.

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Definitely show the doctors the photos, it is possible to have a allergy to water but it could be anything. The only way to get an answer is for the doctors to see and for you to tell them everything no matter how small. It's good that you have an appointment this week and don't forget to show them the photos and tell them everything even if it seems small. They need to know the full picture of what's going on otherwise they can't find out what's going on and treat it.

I'm not a doctor but even I can see it's not normal. I can only base my knowledge on coming from a family of dodgier skin from Psoriasis, eczema and other crazy reactions to all sorts of things.

Let us know how you get on at your appointment and please don't hesitate to explain to the doctors your concerns, they need to know.

X

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Thank you

I think I’ve always worried incase they chuck water over me and nothing happens 😂 the body seems to let you down when you need it most !

I’m going to mention it though as it only happens on my skin that I have reoccurrence problems with

X

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That could be where the skin's weak point is and why it's reacting. Which is why it's all the more important to tell the doctors. Also keep an eye on the rest of the skin for anything else that may happen. It's hard sometimes especially if it's in a place that's hard to see like the back of the neck or (where the sun don't shine) back of the thighs and back of the head the hair makes it even harder to see.

I've become adept at using a couple of mirrors to check out anything that's irritating me skin wise.

Good luck with your appointment. X

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Mine does this to water. Only on tops of legs and bottom. It is usually more apparent in a flare so I’m positive it’s autoimmune linked. I mentioned it to the consultant Friday they didn’t say much to be honest. Just it could be reactive when my body hits hot or cold and my body is not sure how to deal with the different stresses if that makes sense. It’s very strange as I’d assume this is something my body is used to. xxx

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Mine is definitely more prominent when I have other symptoms that are active . I’m at dermatologist on Wednesday will let you know if this is acknowledged in any way x

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Yes please! Thank you :) x

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Hi up until I had SLE I would have a hot showernow in order to have a shower the water has to be cool and very quick time in shower then epaderm all over my body as I am the same as you x

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Have you been explained why this happens? X

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Hi Alan

Does the epaderm help your skin after a shower? I've got some but I've always found it a bit 'claggy' to apply so I stopped xx

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Hi Lisalou

Like Suzannah, I have an allergy to water - crazy!

I paid to have an allergy test about 10 years ago (cost = £150; referral from GP). The consultant talked to me about my lifestyle, diet etc. Then picked around 16 allergens for a skin prick test. The control they used was water and low and behold I reacted to that!

He could not help further of course so I thought about the times when my skin was fine and that was in places like Scotland. So I was pretty sure it was a hard water issue as I live in a hard water area of the country. We had a soft water tank fitted. And hooray the problem was solved!!

Hope you get to the route of what is causing yours.

Joy

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My skin reacts to water as well..so many times I've said to my hubby..what's the matter with me? ..it's like I've become allergic to water or something!!

I've never been a shower everyday kinda person but now I'm sticking to washes rather than showers n I can't use soap..I get Dermol lotion prescribed n I have to use that instead of soap. Skin eh?? It's a blooming nightmare..if only I could shed mine n grow a new one!! Xx

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Hit the nail on the head about shedding skin, mine is just useless!!!! It lets me down in every way!!!!! I love water? Always have done. I’m hoping my appointment this week I might get some advice!

I’m not convinced it’s an allergy, it actually seems to high light my skin where I get my other skin complaints! It’s almost like the affected skin has got a problem with water!

X

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Yeah me too!! Unfortunately I get skin issues everywhere..except my face!! Bizzarre!! Please keep us posted if u get anywhere with your dermy..mine looks at my skin n just says 'its lupus activity'. Xx

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It really surprises me when I post what I think is irrelevant and so many people can relate in one way or another!

I’m at the hospital Wednesday and I will happily take a shower for them to see what it does to me. I have had a full allergy screening and nothing was detected. This is become a more recent symptom of mine.

I’m so used to all craziness going on, I’ve come become accustomed to accepting as normal

X

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