Lupus and soya milk/ estrogen

[LilyMistri2]

This question is for lupus ladies going through the menopause.

Have any of you taken Soya milk for menopausal relief? Does it make you feel better or worse? I was having a difficult peri menopause and was recommended to start taking soya milk every day. So I’ve been taking it for about two years Daily.

9 months ago I tried HRT patches and cream and within a few days I started to get stroke-like symptoms like I had 30 years ago. Pain in the head, facial palsy, balance probs, muscle weakness. So I immediately stopped the treatment after 4 days. The MRI scan showed nothing through. That’s despite the fact that I’m still suffering from these stroke like symptoms today, waiting to get better

Recently I started feeling numbness in my fingers and heels. My docs are checking me for diabetes and high cholesterol. My rheumatologist noted recently that my ESR is high at 77.

My question is, if the hormone patches and cream did me so much damage, should I really be taking the soya milk? I’ve read how lupus has a dodgy relationship with estrogen. Should I be putting any of this estrogen in me? Please let me know your experience of soya milk and estrogen.

Many thanks! Xx

[LupusKaren]

I cannot take any soya products at all, it sends me straight into a Lupus flare. Am also in menopause.

[LilyMistri2 in reply to LupusKaren]

Thanks for letting me know.

[Barnclown in reply to LupusKaren]

Me Too: soya is poison for me! My menopause was in the early 1990s

[LilyMistri2 in reply to Barnclown]

Thanks. X

[Raceworks52]

Hi there I don’t know much about soya products but I myself am going through menopause and I was told by my gynecologist many years ago that I would not be able to take any hormone replacement therapy as it would cause my lupus to flare up. So I have never taken anything and it’s been 7 years and my rheumatologist also agreed that I should not take any HRT Just also to mention I am living in South Africa. From the onset I have not taken anything except my Lupus meds. I would be really interested to hear other people’s views too. Such an important topic for us ladies because when I ask any dr the answer is just a straight no with no real explanation except it will cause your lupus to flare. Wishing you well and hope you get all your answers good luck take care

[LilyMistri2 in reply to Raceworks52]

Thanks so much for your reply and good wishes. Tbh I think you’re lucky to have had such sound advice. My gynaecologist was raving about HRT. And that has done me untold damage. My rheumatologist meanwhile said we don’t recommend HRT but you can try it if you want. And about 4 family doctors said they had no prob. I wish I’d had your doc!!! Take care. X

[miccika1]

Taking estrogen with no progesterone is something I would not be willing to try. If there is way more progesterone than estrogen in whatever you are taking than maybe you could try. Hearing about your reaction i wouldn't take soya either...

[LilyMistri2 in reply to miccika1]

Definitely something to consider. Thanks v much.

[LupusKaren]

A link which might be useful Lily.

everydayhealth.com/lupus/ma...

[LilyMistri2 in reply to LupusKaren]

Thank you for that. It’s a good article.

[Cann in reply to LilyMistri2]

This could have been modelled on me.

Doctors have not diagnosed Lupus possibly because I muscle test for what I can eat since becoming seriously ill following surgery and damaging drugs.

I don’t think they tested for Lupus at that time although I had platelet count of double the norm, anaemia, hormonal imbalance, asthma, blood clotting and bleeding disorder to name just a few.

The tests, since being on the strict diet similar to stated here in this website, all showed normal apart from thyroid, but as one doctor stated Hashimoto’s, levothyroxine was not a choice for me as when hyper, I could have become toxic as a friend did.

I can’t eat too much high protein, caffeine, alfalfa sprouts or any soya.

I have to be careful of the salt in tinned fish and, of course, the toxicity of fish, so I keep it to a minimum by muscle testing.

I eat berries, apricots and sweet potatoes along with green veg. but have to be careful because of the thyroid with some green veg.

I stick to organic as much as possible including eggs, but it is impossible to get everything organic in my area.

I don’t do well on dairy – it seems to cause myocarditis.

I eat nuts and seeds often in the form of butters to be able to absorb them better.

[LilyMistri2 in reply to Cann]

Gosh I’m so sorry to hear about how all this affected you. Thanks for sharing it and I hope you keep well. X

[Cann]

I can't take soya milk or anything with soya in it. I use muscle testing to find what I can take and fortunately since being seriously ill I have avoided drugs because when I muscle test for them my muscles go weak - a great way to find out what you can take and can't. It does take time and food planning, but worth it to stay reasonably well.

[LilyMistri2 in reply to Cann]

Wow. Where do you get muscle tested?

[Cann in reply to LilyMistri2]

I used to be tested by a lady in Cornwall until she realised I couldn't keep travelling and my body changed so much, so she taught me how to do it for myself - I use Hashimoto's muscle test. There are many and I attended workshops on kinesiology, too, to try others, but none worked so well for me as the one she taught me.

[LilyMistri2 in reply to Cann]

Thank you for letting me know.

[eekt]

I have progesterone HRT (a Mirena implant) and it has been a godsend, though I still have night sweats. Hoping for a swift recovery from your stroke-like symptoms xxx

[Hidden]

Mirena is not advised if you have AIC.

It's a chemical synthetic version of Progesterone, not a real bioidentical hormone.

It's actually called PROGESTIN. Not the same thing.