Hi everyone, I promised I’d update through this journey with my second opinion after the first rheumatologist I saw dismissed my bloods and was unhelpful to say the least.
Anyway... following on from my private consultation with the lovely Dr Parker, I have now finally seen him in his NHS clinic.
He’s just followed the plan as per our discussion in his private clinic:-
Referrals to his eye people, lip biopsy and scan on my glands.
He’s trialing me on prednisolone alongside Hydroxychloroquine until enough time has passed for that to kick in (3-4months). He’s going to see me again to monitor how I’m getting on half way through the steroid course so maybe 6-8 weeks time?!
And it’s just a case of seeing how I go on things and see what comes from these other tests I’ll be having done.
He didn’t over promise anything which I really appreciated, although he seems certain there is some immune response happening, he said he can’t always label it. He said it all better than I do haha.
So I just hope my body responds well to these meds, I’ve not taken much medication as they’ve never known until now what’s been going on. I only currently take propranolol which only masks the migraines being 24/7 pain and horribleness!
He talked about feeling normal and I just couldn’t help but say wow that’s all I want and all I could ever wish for.
I’ll update further when I’ve had these tests and results back again and let you know how I’m doing on the meds. I just hope my body isn’t annoyingly over sensitive to these drugs!
Sending you all positive vibes xxx