fingertip sensitivity

[originalsweetie]

anyone here experiencing extreme fingertip, bottom of foot sensitivity? i have lupus nephritis and just went on a bunch of new mediciation including myfortic, crestor, ramipril . i am now unable to do it simple things like open a tupperware container as it sends pain in my fingertips. thanks

[honeybug]

Xxx 🤗💗🙏😇

[suzannah16]

I get it in the tips of my toes but i'm not on any of the medication you list. If I put shoes on too quick and my toe tips touch the shoe I nearly hit the ceiling in pain.

[Krazykat26]

Yes I have extreme sensitivity in feet and hands which has been going on for years..I have to dress them because in 2016 my feet became ulcerated..I find it very hard to wear footwear of any kind n now I'm having to use a wheelchair as my balance is always a bit wobbly. Now my hands r affected as well n the skin keeps breaking down giving me weeping sores on all fingers and the heel of my hands so it's hard to get up out of chairs etc. I've got cutaneous lupus and am on different meds to u..I'm having problems coming off of steroids and have been on them for most of this year..it seems that whenever I reduce from 10-5mgs I have problems. Im prescribed steroid creams..betamethasone is a medium strength and dermovate which is high strength..but I use this when the skin is cracked. Your skin looks intact. I also use a lotion called Dermol..it's light and soaks into the skin really well and it's good for if your skin is itchy ..like dermatitis or eczema. These are prescribed for me originally from dermatology. I've been asking if I have Raynaud's but I haven't had any answer to that question so far..but my hands started off like yours look now. Skin is such a major organ there's so much of it that the wolf can have a go at..mine is always at it this year especially!! It's frustrating when I can't get lids off pots..open tins etc..lots of cursing swear words come out of my lips I can tell u!!! Xx

[DJK99]

Hey there - yes, had this lots before SLE diagnosis (was UCTD at that point) and also whilst eating.... alfalfa. Stop that if you eat it... totally linked, for me anyway. Was on Hydroxy for about 5months couple of years ago, but had to give up as made me so unwell - but it wasnt until I was on methotrexate (at time of actually diagnosis of SLE this Feb) that the v painful lesions got better on fingers and had one on side of palm, and the peeling skin at tips of fingers which really hurt doing every day things started to improve. My rheumy said it was vasculitic lesions. Is your doc saying same thing? I also had similar to your photos on my feet - but no actual breaking of skin. I use Eucerin 10% lotion on them every day and dont walk as much at all now since become more tired/work from home so feet feel less unhappy (apart from right now as recovering from bi lateral bunion etc surgery!). Are you using non fragranced everything ie detergents/lotions etc? And something like Eurcerin? It might help - maybe not - but I found if I dont do either of those things my skin is in a right ole state. I think yours is obviously coming from within but helping from without can only help I guess. So sorry youre going through all this, sounds so awful and debilitating... Hope you start to improve soon - and the above helps in some way. All the best, Deb x