Stressed since my last post about being declined from seeing the physio and being passed back to the Pain Clinic (which I've heard nothing from)
I've had great advice from everyone about the matter. My problem is I'm now petrified to call PALS. I know everyone has said that they are very helpful and just call. But since speaking with my GP I feel like I'm wasting people's time. It's probably in my head.
I know the best advice is to just go for it. But I've procrastinated every day.
Now I've got tiny red spots, not raised at all, mostly on my torso but a few elsewhere.
So I guess my real question is do you think this is stress related or otherwise?
History : Hypothyroidism diagnosed at age 39, EDS, muscle spasms since chidhood, Chronic Sinusitis, Eye issues, Osteoporosis, Osteoarthritis, Gastroparesis, stomach issues for over selling of joints, Legs swell quite a bit, anaemia, vitamin B12 & D deficiency, POTS, something to do with adrenal or heart racing problem/not diagnosed, Sternum & Rib cage pain, Sciatica, Sacroiliac and other problems to do with Sjögrens-discussed but not diagnosed, same with autoimmune-discussed but not diagnosed, latest is continuous Candida and tiny red spots and worst pain at the moment is leg pain, painful feet to walk on started last night. Most likely more but can't think of just now.
I think my fear of calling PALS is that I know feel like it's all in my head and just not being strong enough. I know the answers, I just can't see them right now.
Thank you guys ❤
Be as Well as YOU can Today 🧚♀️
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Ladyuponthelake
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I don’t think it’s all in your head for one minute. I think you just need a rheumatologist who knows enough about diseases such as Vasculitis - which is rare. But I know from personal experience that when self doubt creeps in, as it does for many of us, it’s probably not a good time for you to speak to PALS. You need to feel galvanised and sure of yourself.
You have more things diagnosed than I do and none of them are straight forward to treat or live with. I would say that it would be very unlikely that spots under the skin are the direct result of anxiety of a somatosisation disorder. I think they are more likely to be the result of a stress related autoimmune flare up causing small vessel Vasculitis.
But then I only have Sjögren’s and Hashimoto’s confirmed along with significant degenerative disc disease - and only presumed small fibre neuropathy, small vessel Vasculitis, osteoarthritis, EDS and autonomic dysfunction.
On the other hand I do get neuro and rheumy physio and I do get OT - but this all came out of attending an NRAS local group meeting and learning that Rheumatology patients can self refer for these in my hospital.
And extracting a referral to pain clinic has taken me 7 years and fractured ribs! And still the most disabling of my symptoms are being classed now as functional overlay. My suspicion is that some of it is this sensory overlay relating to fatigue - but neurologists are keen not to have a definitively confirmed diagnosis of inflammatory small fibre neuropathy for me and others here in Scotland or we might legitimately demand IViG - which is a very very expensive and scare resource.
As I told my neuro physio I just don’t think my imagination is sufficiently fanciful and out of control that I could dream these symptoms up. Do you really think yours is? X
I will get in touch with them. It is on my list. I just need to get my head in the right place to ask for help again. It feels like since I went PRIVATELY to Dr Hakim and asked for help, I've been penalised for not trusting the NHS. Through no fault of Dr Hakim of course. So that and stress have hindered my necessary call to PALS
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White spots on lungs
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